Help Brain tumour

Hi madaboutpink, I found 2 groups on FB that is really great, where you can share your story and ask questions. I'm not sure what type of tumor you have but I think it will be good to give it a try! BraintumorSurvivors and Oligodendroglioma/Low-Grade Glioma Warriors

I am currently in the USA helping my little sister who has stage 3 breast cancer and is also a single mother of 3 children, the youngest of which is just 3 years old. My sister works full-time. I am doing the school run, cooking, cleaning out cupboards, laundry and anything that is needed so my sister can concentrate on working when she can and all of her hospital appointments and chemo sessions. I have put my life on hold for 2 months, as in my book - Family come first. I will be back after summer to help her after surgery for a mastectomy. Our other sister died age 44 from Pancreatic cancer. She had 4 children. I hate cancer! I would also say go home, where you have a family network to help you out when you need it. Good luck with your treatment. Please let us know how you get on. <em>edited by ShellAR on 08/04/2014</em>

I have a close friend who has a brain tumour and is having surgery shortly. She did the rounds of surgeons in Dubai but never felt fully comfortable with the advice she was given. As my family are nearly all medical (Doctors, Dentists, Radiographers etc.) and we have many good friends who are medical and quite high up in the NHS I asked some of the professionals I know. From three independent doctor friends I was told to advise my friend there is only one place for neuro surgery in the UK, Queen Square in London. It is a leading neuro hospital in the world and certainly the leading one in the UK. They recommended looking for the Director for Neurosurgery and starting from there (try to find the leading surgeon that deals in brain tumours rather than spinal). Many surgeons there are able to provide consultations over Skype and you can FTP/Dropbox your scans etc. to them. http://www.uclh.nhs.uk/OurServices/OurHospitals/NHNN/Pages/Home.aspx http://www.qspcr.com/queen-square.html As for recovery it all depends on the size, location of tumour, type of removal etc. There are several ways to remove a tumour craniotomy, endoscopically, aspiration, stereotactic and more. They all involve different surgery times and recovery times. (details) http://www.advanced-neurosurgery.com/#/brain-tumours/4576460420 http://www.cancerresearchuk.org/cancer-help/type/brain-tumour/treatment/surgery/about-brain-tumour-surgery A surgeon should be able to advise the best choices for your type of tumour after seeing your scans. He should also give you all the details regarding expected recovery, long term risks, statistics for your type of surgery etc. If possible you may find it helpful to have an online/telephone consultation with a Queen Square surgeon to give you some advice. After my friend had a consultation with a surgeon there she definitely felt much better and knew more about what was going on, her partner also found it hugely helpful and informative. <em>edited by RuthM on 07/04/2014</em>

I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets Sorry, but this is all utter, utter nonsense, like every other post that gets shared around Facebook claiming that some completely natural plant-based substance is a miracle cure for cancer that "Big Pharma" doesn't want you to know about. There isn't a shred of real evidence that any of those supposed treatments actually work. All those posts do is create entirely false hope and entirely unjustified suspicion of science-based medicine. It's just possible that some cancers may have regressed [b'>coincidentally[/b'> after the patient started taking whatever miracle cure supposedly worked for them, but coincidence is all that it is. Actually, the non psychoactive derivatives of cannabis are showing promising results against cancer cells Invitro. Lots of credible studies and research on cannaboid receptors CB1 and CB2 have and are still being conducted. However, all experiments are still in Petri dish stage and no credible animal testing has been conducted till now. Last week I read on gulfnews that the UAE scientist are currently conducting experiments with cannabis to treat cancer, they claim to be testing on frogs and the results are promising. So yes, cannaboids can in the near future treat cancer hopefully, but as of now to claim it as a cure is dishonest. Gotta love Google. Not really, I do love online lectures from various professors and scientist so I can learn more then what I know.

I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets Sorry, but this is all utter, utter nonsense, like every other post that gets shared around Facebook claiming that some completely natural plant-based substance is a miracle cure for cancer that "Big Pharma" doesn't want you to know about. There isn't a shred of real evidence that any of those supposed treatments actually work. All those posts do is create entirely false hope and entirely unjustified suspicion of science-based medicine. It's just possible that some cancers may have regressed [b'>coincidentally[/b'> after the patient started taking whatever miracle cure supposedly worked for them, but coincidence is all that it is. Actually, the non psychoactive derivatives of cannabis are showing promising results against cancer cells Invitro. Lots of credible studies and research on cannaboid receptors CB1 and CB2 have and are still being conducted. However, all experiments are still in Petri dish stage and no credible animal testing has been conducted till now. Last week I read on gulfnews that the UAE scientist are currently conducting experiments with cannabis to treat cancer, they claim to be testing on frogs and the results are promising. So yes, cannaboids can in the near future treat cancer hopefully, but as of now to claim it as a cure is dishonest. Gotta love Google.

I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets Sorry, but this is all utter, utter nonsense, like every other post that gets shared around Facebook claiming that some completely natural plant-based substance is a miracle cure for cancer that "Big Pharma" doesn't want you to know about. There isn't a shred of real evidence that any of those supposed treatments actually work. All those posts do is create entirely false hope and entirely unjustified suspicion of science-based medicine. It's just possible that some cancers may have regressed [b'>coincidentally[/b'> after the patient started taking whatever miracle cure supposedly worked for them, but coincidence is all that it is. Actually, the non psychoactive derivatives of cannabis are showing promising results against cancer cells Invitro. Lots of credible studies and research on cannaboid receptors CB1 and CB2 have and are still being conducted. However, all experiments are still in Petri dish stage and no credible animal testing has been conducted till now. Last week I read on gulfnews that the UAE scientist are currently conducting experiments with cannabis to treat cancer, they claim to be testing on frogs and the results are promising. So yes, cannaboids can in the near future treat cancer hopefully, but as of now to claim it as a cure is dishonest.

Ladies thank you so much for your helpful replies . I am to speak to the surgeon end of April meanwhile I am moving house and dealing with As plus IGSE'S for my 2 eldest . I am also in the mist of a messy bitter Divorce to boot. I will remain strong and my first priority is my precious children who are my life. I have also re done my will and am sorting out my list to do. Surgery will be carried out at Addenbrooke's in Cambridge and then not sure for recovery time but thank you all for your kind words and prayers. MAB My friends husband had the worst type of tumor I think his recovery from surgery was about three weeks but it really depends on what part of the brain the tumor is in to how long recovery will take. You really are going through a tough time I hope you recover quickly, good luck x http://www.cancerresearchuk.org/cancer-help/type/brain-tumour/about/brain-tumour-symptoms

I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets Sorry, but this is all utter, utter nonsense, like every other post that gets shared around Facebook claiming that some completely natural plant-based substance is a miracle cure for cancer that "Big Pharma" doesn't want you to know about. There isn't a shred of real evidence that any of those supposed treatments actually work. All those posts do is create entirely false hope and entirely unjustified suspicion of science-based medicine. It's just possible that some cancers may have regressed [b'>coincidentally[/b'> after the patient started taking whatever miracle cure supposedly worked for them, but coincidence is all that it is. Well said...

I am so sorry you are having to fight this battle madaboutpink. I too agree that it is really important for you to be near family and friends. It will do you no good while undergoing surgery and treatment to have to worry about your children......you will need all the strength you have to recover and heal. You are in my thoughts and prayers. <em>edited by Nomad on 07/04/2014</em>

I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets Sorry, but this is all utter, utter nonsense, like every other post that gets shared around Facebook claiming that some completely natural plant-based substance is a miracle cure for cancer that "Big Pharma" doesn't want you to know about. There isn't a shred of real evidence that any of those supposed treatments actually work. All those posts do is create entirely false hope and entirely unjustified suspicion of science-based medicine. It's just possible that some cancers may have regressed [b'>coincidentally[/b'> after the patient started taking whatever miracle cure supposedly worked for them, but coincidence is all that it is.

My SIL had her brain tumour removed here in Dubai five years ago. She went to the dentist and he saw something strange on the roof of her mouth and told her to go to a doctor. After checkup and MRI the doctor confirmed she had a tumour the size of a golf ball on the right side of her brain. She had it removed by the brilliant staff at Emirates Neuro Spinal Hospital. The operation was a few hours long. Tumour turned out to be benign (so no chemo or radiotherapy needed) after it was removed and she recovered very fast too (3+ weeks). You need to be close to family or a support system if you are going to go through this as its an emotional journey. <em>edited by Appletiser on 06/04/2014</em>

Hi all, Anyone had any experience with treatment on discovering a brain tumour . I am so loath to have major surgery and wondered if any of you had any suggestions or first hand experience. What would you do? Any advice greatly appreciated. TIA. I am sorry you are going through this. My advice is to go home near to family. Do you know what type of tumor it is? Will you require further chemo after its removed? Recovery can vary from person to person so its better to be near family if possible.

Mum2girls Thank you for your kind reply . Unfortunately I flew back to the Uk and had Gamma Ray treatment or radiotherapy and now my choice is only surgery but with 3 children on my own it is very daunting .I really wanted to know if anyone knew or has had surgery for tumour removal and how long recovery would be etc. Do you have any family or links to family in the UK? Because now is the time you need to find them and speak honestly to them. If you are eligible without question you need to have your treatment in the UK. You need to discuss it with your surgeon and put in place contingency plans for your children. This is a terrible thing to face alone but putting off treatment is not helping. You need to get the right advice, right help and deal with this thing so you can but it to bed. There may well be a support network in the UK that can help look after your children while you are recuperating, speak to your hospital or social services about such care.

Best wishes to you madaboutpink. I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets. Pls ignore my reply if not suitable to you, i dont mean to undermine the procedures that been carried out for you. If you decide on surgery, i will be happy to help you as much as i can. I am a mother of two girls but have a nanny. All the best to you brave mum xxx What a peculiar post and just who suggests defeating cancer with a bit of pot?

Such a difficult time for you madaboutpink. You will be agonising about your children on top of your own dilemmas. Like others, I don't have any experience with this but I have just had surgery with a neurosurgeon here in Dubai and although he is not renowned for his people skills he is an excellent surgeon. If you can put that aside and want to talk to him, give Dr. Walter Bini at City Hospital a call. The nurses in the ward said that they would choose him as their surgeon of preference for neurosurgery. Best wishes in the months ahead. xx

Best wishes to you madaboutpink. I have no experience with brain tumour but recently heard that cannabis oil can cure such tumour with no need for surgery or chemo. Also heard about "defeat cancer now" book that shows how cancer can be reversed naturally by following some diets. Pls ignore my reply if not suitable to you, i dont mean to undermine the procedures that been carried out for you. If you decide on surgery, i will be happy to help you as much as i can. I am a mother of two girls but have a nanny. All the best to you brave mum xxx

Really sorry you are facing this, it must be scary. Honestly, fif you haven't already, I would have a 2nd opinion in Europe or the US immediately, then decide. If it's malignant then you will probably want it removed ASAP if that is an option. If it's benign, and depending where it is, you might decide to take a monitoring and wait and see approach. A friend has a benign brain tumor and has opted for the monitoring and wait & see, she is not based here though and is with a top specialist in a New York. Good Luck whatever you decide. <em>edited by mum2girls on 06/04/2014</em>