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jewelsmiddle
Posts 872
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18/11/2010 22:26:33
bjones
Any developments so far with your little child ?
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Mrs Laughan
Posts 1537
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13/11/2010 18:52:12
Daza - thanks for the Tamari suggestion, but unfortunately in the meantime DS is yeast free so nothing fermented.....I am hoping that will be something he can add back in after being off it for awhile.
Melsi - you seem very knowledgable about gluten free - do you know a good flour mix?(I don't mind mixing it myself, but most of the "recipe's" I have found require potato starch- as opposed to flour - which I haven't been able to find yet) I am a very keen home baker and would prefer to adapt some of my recipe's rather than use pre-made mixes....
Sorry Melsi - just spotted your email, I will drop you a line MTIA
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Melsi
Posts 25
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13/11/2010 17:38:25
I have four year old twins who are yet to be confirmed Coeliacs, (all of the symptoms from weaning so always advised to stay gluten free until 5 years old, when we shall have to re-introduce wheat for confirmation tests. I was diagnosed Coeliac 3 months after there birth.
Gluten free and wheat free are not the same thing, and spelt can be used in a wheat free diet.
There are lots of alternative flours, which although more expensive are frequently much higher in nutrients, like amaranth, quinoa and teff.
We have always made sure the twins have an absolutely normal life, attend parties (I cook and supply whatever is being served with a little guidance from birthday mum. We also eat out frequently, and my incidences of 'problems' are rare, probably around 25-30%, but again not prepared to compromise on life. Just speak to the chef, not the waiter. Jumeirah are excellent, and there is a special gluten free menu at many restaurants.
I keep a stock and supply of recipes, have just made GF/DF/eggfree christmas cake for our family and a friend who has just had a load of food intolerances diagnosed.
f you would like any recipes/advice/someone to talk to please email me; mel.j.simmonds@gmail.com
You soon get into the swing of things
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SJAussie
Posts 1457
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13/11/2010 17:05:28
Been following this thread with interest -t hanks everyone for their responses.
Mrs Laughan , we are up to day 3 of wheat-free and although too soon to tell if there are any decent results for us or not, managing to find food is testing but proving ok. We haven't tried the pancakes yet but are working our way through a whole bundle of other wheat-free products from the Organic Shop and so far so good, just having to be a little creative.
BJones, don't feel bad if your daughter suffers from this as it is very common for children, worse in some than others. Despite doing all the recommended foods (too many to list here!), liquid intakes, Duphalac, Movicol, and other suggestions by doctors, nutritionalists etc, we are still have problems. No physiological issue, but still happening and it also breaks my heart to see DD suffering in pain.
Daza, soluable fibre can be a good option, but it has to be very carefully monitored and correct dose administered as too much expandable soluble fibre can in fact expand and block up intestines doing more harm than good, and in fact amplfying the original problem that was trying to be fixed.
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BJones
Posts 20
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13/11/2010 15:58:01
Ladies, thank you so much for your golden advises. We'll try and let you know how things go.
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Daza
Posts 2141
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13/11/2010 15:03:07
Mrs Laughan, the Organic Shop (and probably some other supermarkets) sells Tamari which is a wheat free version of Soya Sauce, it's with the other soya sauces, next to noodles and non-olive oils.
Bjones, my DD's paediatrician recommended Benefibre when she was constipated (aged 2). It's a soluble plant fibre which easily mixes in with food or liquid. She ate plenty of high fibre foods but had gotten constipated for whatever reason. It then started to hurt when she did actually manage to go so she was scared to go and stopped herself which made the problem worse etc etc etc. Vicious circle. Anyway, she took it daily for a couple of weeks, it worked and seemed to get her body in a good routine as the problem as not returned. You can buy it at most pharmacies.
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jewelsmiddle
Posts 872
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13/11/2010 14:16:36
What ever you do , do not feel your a bad mother if you are doing all you can to sort out the problem and following the medical advice. Things take time to get to the bottom of issues and can be very very frustrating.
As Mrs Laughan wrote maybe this person at Wellbeing or somewhere alse can help you .
In the mean time, squeeze fresh orange juice each day and give your child maybe 2 ozs in the morning and again in the afternoon and if they refuse it mix it with another drink they will like ( not milk as it will curdle).
Buy fresh grapes and let the child eat them also.
Forget the potty training and ignore any comments the child is not potty trained yet. it will come in good time and better sort the bigger concern first.
Let us know how things go for you.
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Mrs Laughan
Posts 1537
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13/11/2010 13:56:47
Bjones - I would definatly go and talk to Lanalle Chapman - I wish I had taken DS sooner. I wouldn't cut out a food type (ie wheat) without discussion with someone. The reason being is the biggest problem for DS is actually eggs...I would have never guessed that. She will also be able to advise about what she needs to maintian a balanced diet.
her contact details are
Lanalle is at Wellbeing Medical Centre Nr is 04.3484406
she is off for Eid, but maybe make an appt for when she gets back.
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BJones
Posts 20
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13/11/2010 11:57:05
Thanks Jewelsmiddle, she is on a high fibre diet... mix all the fruits in her morning porridge, avoiding bananas etc
she is a picky eater like most at her age but i am trying my best to feed as much fibre as i can... cannot start potty training as she will hold the bowel if nappy is not on which makes it only worth... its heartbreaking to see her in pain and i cannot stop feeling like a bad mother for not being able to help...
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jewelsmiddle
Posts 872
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13/11/2010 11:09:18
Dear Bjones, if you have not already tried,the following may help.
Freshly squeezed oranges , plenty of soft fruit, ( not banana's ) Grapes, strawberries, orange pieces, there are many others and yes your doctor is correct water water water also but water on its own is insufficient as one needs fibre, porriage oats is a good source of fibre also which I am sure you doctor will have told you how important fibre is.
I would be careful to start going down the route of worrying about wheat etc etc as in todays world most of us are probably intollerant to some food/s. Having said that if you have previously tried the above consistently for at least a month and still no joy then yes maybe one need to look at the possibility of other issues.
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BJones
Posts 20
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13/11/2010 10:48:58
Dear SJAussie, my 2 years old is suffering from constipation as well..... took her to many docs but no one suggested wheat- free diet ..... Duphalac , lots of water bla bla.... nothing works... not a very good doctors probably...
Please share contacts of your specialist. Many thanks.
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Mrs Laughan
Posts 1537
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13/11/2010 09:38:13
Thanks tea bag and Zanzec
Made DS "free" choc chip cookies yesterday (from a mix from the organic store) and he likes them!!!
Avocado is on the ban list too - along with oiley fish, he I was feeding him up on Omega 3's and making it worse!
Zanzec - any idea where I can get "braggs" from in Dubai? DS will really miss Soya sauce...I looked at the organic store yesterday and couldn't find it, but that may be b/c I was completely overwhelmed!!!!
made him Pancakes this morning, but he wasn't convinced but his sister loved them!!!
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Teabag
Posts 400
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11/11/2010 17:56:08
I used to take 'party food' for mine to fit in with what everyone else was getting.
You can make nuggets by covering chicken breast pieces with crushed rice krispies (mine like me to mix in those dried fried onion bits you can get in the dried food section). You can add your own fries - beware of fries from bought sources - inc. fast food - they are tossed in flour.
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xanzec
Posts 503
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11/11/2010 17:35:13
Mrs Laughan wrote:
Just starting out DS - it is going to be a nightmare, we have to avoid Gluten, Cows milk, Eggs and yeast!!.
SJ - I am going to pack him his own snacks - but be relaxed when he is with friends.
We are just starting out so any lunchbox, snack tips are really appreciated too
When my kids were younger, I normally feed them first before we attend any parties or functions and bring along some of their own snacks with them.
Mrs. Laughan, you can try to bake the Orgran Chocolate cake using egg replacer from The Organic shop for your child.
I used to make 'ice creams' by blending avocados and bananas. You can also get the soy based ice-creams from Spinneys/Choitrams. For school lunches, they have sushi, rice with dishes, fried rice noodles. You can use herbs for seasoning. I also made some mochi for their snacks this week. You can also use Braggs Amino Acid to replace Soy sauce. HTHs.
edited by xanzec on 11/11/2010
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Daza
Posts 2141
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11/11/2010 17:22:54
If you're looking for a treat for your DD, the Organic Shop does a fantastic gluten free/vegan chocolate cake on Tuesdays. Although I have to admit that I don't always share it with my kids...
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SJAussie
Posts 1457
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11/11/2010 16:40:20
Thanks ladies for your responses.
Wendopia - thanks for the link, will check it out. To answer your question, not allergic but supecting an intolerance. DD suffers from chronic constipation (as diagnosed by the Dr) despite medication, correct diet, adequate water intake etc, and given the strong link between constipation and wheat intolerance, we are trying wheat free for a while to see if it makes a difference.
Daza - think you are right, will just require lots of pre-planning and organisation. Think I will need to be strict and really try to keep her wheat free to see if it gets results otherwise if we only hlaf follow then we won't be able to gauge if it is making a difference or not.
Mrs Laughan - feel sorry for you trying to avoid all those things! Thankfully we are only wheat at this stage, dairy will be the next stage if wheat is not the cause or contributor. Pls let me know how you get on with your DS and any good snack ideas you come up with.
laura321 - Will check out the BBC food website, thanks for the tip.
edited by SJAussie on 11/11/2010
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laura321
Posts 96
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11/11/2010 16:30:38
One of my friends cant eat wheat so at times difficult to find a restaurant. I know Wagamamas in the UK does wheat free dishes - maybe they have the same menu here?
Also, looked on BBC food and they have lots of wheat free receipes
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Mrs Laughan
Posts 1537
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11/11/2010 16:29:08
Just starting out DS - it is going to be a nightmare, we have to avoid Gluten, Cows milk, Eggs and yeast!!.
SJ - I am going to pack him his own snacks - but be relaxed when he is with friends.
We are just starting out so any lunchbox, snack tips are really appreciated too
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Daza
Posts 2141
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11/11/2010 16:09:23
Hi SJAussie
None of my kids are on special diests but I'm vegan and I find I just need to be organised. If I'm going somewhere I'm unsure if I'll be able to eat I take food with me. Maybe for playdates you could send her with a snack box? Parties will probably be the trickiest although she is old enough to understand what she can and can't eat. It also depends on how strict you need/want to be.
Although eating out seems daunting now you'll quicky work out good places to eat. As Wendopia said, the Organic Cafe is one. I could be wrong but I think The Lime Tree also lists which foods are wheat free. If not they have complete ingredient lists available. Any menus that feature rice heavily should be good - if she likes rice! Bear in mind though that many soy sauces have wheat in them.
Good luck.
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Wendopia
Posts 1404
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11/11/2010 15:43:33
this might interest you 
http://www.organicfoodsandcafe.com/index.php?option=com_content&view=article&id=78&Itemid=83
gluten-free at PF Changs. http://www.pfchangs.com/menu/ (not sure if that's the same wheat free..)
edited by Wendopia on 11/11/2010
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Wendopia
Posts 1404
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11/11/2010 15:41:16
Is she allergic?
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SJAussie
Posts 1457
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11/11/2010 15:24:33
Bump - anyone??
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SJAussie
Posts 1457
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11/11/2010 13:31:05
Starting my 4yo DD on a wheat-free diet. I have stocked up on products and eating at home seems fine, but the practicalities of eating out, play dates and parties seems daunting. Does anyone else have young kids who are wheat-free and any tips or suggestions? TIA.
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