For all of you who have a Thyroid problem | ExpatWoman.com
 

For all of you who have a Thyroid problem

242
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EW NEWBIE
Latest post on 26 April 2012 - 15:48

I have had an underactive thyroid for the last 18 or so years, my symptoms have always remained despite taking T4.

At the end of last year I joined a UK support group and visited a recommended Dr in the UK.

He changed my medication and I am now getting back my life. (turns out I wasn't lazy, mad, overeating and always tired for no reason after all, just on medication which was not working)!

This support group has just sent out information on a new Dr who will help advise them - good news he is in Dubai, I think at the medical centre in the Green community.

For those of you who have Thyroid problems and are looking for a good DR please see info below.

Dear Members,

I am very pleased to announce to you all that we have a new Medical Adviser.

Dr Malcolm Maclean is a Scot (that makes two with Dr Skinner). He is a
graduate of Cambridge University and Westminster Hospital Medical School,
who developed an interest in Thyroid disorders, having himself been
diagnosed as being hypothyroid in his 50s.

Mainly practicing in the fields of general practice and child health, Dr
Maclean undertook epidemiological and biochemical laboratory research into
the causes of birth defects, focussing on the possible role of a thiol
enzyme (COMT) as a factor in these disorders. He has a continuing interest
in the possible role of thiol enzyme defects in the development of disease.

As a Scot, he is particularly interested in the view that Scots, as a Celtic
race, are particularly at risk to hypothyroidism. That view, proposes that
races which historically were forever on the brink of starvation, developed
an "Off" switch of their thyroid system, which is on a "Hair trigger".
Viewed in evolutionary terms, families, which did not develop that hair
trigger (In order to precipitate a conservation mode at a time of
starvation), tended not survive.

He is yet another good doctor ostracised by the GMC for (Inter alia)
diagnosing thyroid cases with "normal" labs (As have so many other doctors).

He now perceives that a new dawn in medicine is approaching, which will
based on a clearer understanding, acceptance and response to the causes of
disease, thanks largely to the Internet.

149
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EW NEWBIE
Latest post on 03 May 2012 - 22:33
Snugs, I am so glad you reduced your dosage again. You could have done serious damage to yourself for the sake of losing a few pounds! I think your gyn. was rather irresponsible by suggesting you do this, whether it was said flippantly or not. You must have gone into hyperthyroidsm, which is serious if not treated (or in your case, if the dosage is not reduced). Hope you are feeling better now.
149
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EW NEWBIE
Latest post on 03 May 2012 - 21:57
So happy you got an appointment, Kate One! I am glad you found the doctor good. I hope he will be able to help you feel better soon. Take care of yourself!
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EW NEWBIE
Latest post on 03 May 2012 - 21:55
I have to admit to my fellow thyroid sufferers to doing something utterly stupid! I take 200 mcg of thyroxine every day, have done for years and am always in the normal range. Struggling to lose weight, I mentioned this to my gynae, she sort of flippantly said, well you can always up your dosage of thyroxine. So I did. To 300mcg a day. Felt great for four weeks, lost five kilos and then suddenly developed insomnia, anxiety, heart palpitations and became a little angry! Looked it up on the Internet and realized I could have really done some serious damage to myself, I can't believe how stupid I was to do this! Three weeks later I am back to normal but this is just a word of caution, apparently people do this often to boost weight loss! <em>edited by Snugs on 03/05/2012</em>
Anonymous (not verified)
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EW NEWBIE
Latest post on 03 May 2012 - 21:00
Well ladies, I telephone Dr Amel's clinic and was given an appointment for August and was also put on the cancellation list. Miracle of miracles they telephoned and I was offered a cancellation for today. How lucky was that! So I can only say he was fantastic. He went over and beyond my appointment time and was without a doubt the most thorough doctor I've seen. I can't believe that after all these years of living here I'd never heard of him before. I'll get the results of all the tests after the weekend and he has changed my dosage etc. Thank you very much for the recommendation. I'll keep you posted.
412
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EW EXPLORER
Latest post on 02 May 2012 - 00:16
Another thumbs up for Dr. Amel El Tayeb. As MC mentioned, you'll probably have to wait about 2 months to get your first appointment with him, but once you do that, you'll get regular appointments as and when required.
Anonymous (not verified)
0
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EW NEWBIE
Latest post on 01 May 2012 - 19:38
Thanks a million MC. I appreciate the recommendation. It is indeed very frustrating and made worse by the fact that it's a hard condition to explain to people and by not particularly having any outward symptoms people cannot understand it, not that I go about telling all and sundry but even those closer to home really just don't 'get it'. As we know it affects every aspect of your life and even though I try to read as much as I can to educate myself I promptly forget most of it and just carry on hoping it will resolve itself. This time I am determined to get it under control. Thanks again :) By the way I too have had it for 14 years and it's Hashimotos plus fibromialgia. <em>edited by Kate one on 01/05/2012</em>
149
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EW NEWBIE
Latest post on 01 May 2012 - 18:05
Kate One (and others if interested), I understand your frustration. Have been struggling with autoimmune thyroid disease for 14 years now. I don't follow a typical disease pattern and have other complications, so there are no easy solutions in my case. However, I am very thankful to have met my endocrinologist here. He is a really astute doctor, up to date, and he listens to his patients. He says that by listening to your patient, you get the diagnosis, i.e. people tell you what's wrong with them. He always makes time and even if things are not simple, ie. in adjusting dosage or changing meds, he does not give up on you, and always has your best interest at heart. I have been seeing him for a few years now, and he is by far the best doctor I have seen. His name is Dr. Amel El Tayeb, and works out of the Diabetes and Endocrine Center in Healthcare City, 04 375 2345. He is fully booked for a couple of months in advance, but once you are his patient, you will get your required appointments. I hope this helps... If you search endocrinologist or diabetes or thyroid, you will see me recommending him often. I do it because he is exceptional, and I know it is so important to have a great doctor who listens when you have chronic disease. Hope you get better soon. <em>edited by MorningCat on 01/05/2012</em>
Anonymous (not verified)
0
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EW NEWBIE
Latest post on 01 May 2012 - 16:47
My TSH was 0.058 in Feb and I was advised to reduce my meds to 100mcg. Had test done today and TSH is now at 14! At least now I know why I start longing for my bed at 6pm. I'm really sick and tired of being sick and tired and wish Someone could get my dosage or brand of medication correct. I'm seriously thinking of travaling to the UK or USA to be properly treated. Sorry this is a bit rant ish but I could just cry with frustration.
242
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EW NEWBIE
Latest post on 01 May 2012 - 12:54
I think one of the most important things for anyone with thyroid issues is to understand the working of the thyroid and associated issues. As they say Knowledge is power. I read this book and can recommend it. http://www.amazon.co.uk/Your-Thyroid-How-Keep-Healthy/dp/190514010X/ref=sr_1_1?s=books&ie=UTF8&qid=1335861401&sr=1-1 You need to find a doctor who specialises in the Thyroid, most endocrinologists do not. In answer to your question Chocobella, I went to a specialist in the UK. I had many tests including T3 and Rt3 levels. In addition balance, reflexes and symptoms also point to lack of conversion. My understanding is if you have a high T4 blood level and a very low T3, this could indicate lack of conversion. However blood tests cannot show the uptake of hormones at cellular level. This means that blood tests can not be used as the only diagnosis.
274
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EW NEWBIE
Latest post on 30 April 2012 - 15:13
Thanks McB. I will try to see her. Would you say she is progressive in her approach to treatment and does she go beyond conventional methods to understand what is going on with you ? Nikki63, keen on knowing how was it found out you were not converting T4 to T3. Is there a test for this? My experience with her is she looks at one as a whole person so it is important to give the whole picture. I am very happy so far so good.
362
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EW EXPLORER
Latest post on 30 April 2012 - 09:11
Thanks McB. I will try to see her. Would you say she is progressive in her approach to treatment and does she go beyond conventional methods to understand what is going on with you ? Nikki63, keen on knowing how was it found out you were not converting T4 to T3. Is there a test for this?
274
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EW NEWBIE
Latest post on 29 April 2012 - 23:31
Here is a woman who listens to her patients. Endocrinologist Dr Fatma Al Mashri at Dr Suliman Hospital behind Wafi shopping centre Phone number is 04 429 7777 or 04 429 7722
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EW EXPLORER
Latest post on 29 April 2012 - 23:05
bump
362
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EW EXPLORER
Latest post on 29 April 2012 - 07:41
Hello Nikki63, how was it found that you were not converting T4 to T3? I was diagnosed with hypothyroidism and Hashimotos last year and have been on Thyroxine sodium since last 8 months. Funnily, I feel better the day I do not take the medication. My symptoms have remained the same and in particular, I am not losing weight even though my diet has been low calorie and low carb. I seem to be putting on weight instead. I am thinking I might have the same issue as you? Or something else not working quite right. Could you suggest someone I could see in Dubai who would go in depth into why I still have the same issues as I did when I was first put on Thyroxine? Thank you so much!
927
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EW GURU
Latest post on 28 April 2012 - 21:03
Hi Genie Not sure if you are talking about Dr S or Dr P. I saw Dr P, he was absolutley fantastic, I flew back to the UK just to see him. His book is also very good, I would recommend it. It is called How to keep your Thyroid healthy and can be bought from Amazon. Hi Nikki - I was talking about Dr S. I was very grateful for the info you posted about Dr Maclean but it seems according to S&O's post he has left which is a pity. Never mind I will see Dr S when I next go home, I have known him for years and I know he will see me. I would definitely be interested in a support group if I am diagnosed. Interestingly one of the maxim's of Dr S is that the patient will tell you the diagnosis and I do think I have an underactive thyroid.
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EW NEWBIE
Latest post on 28 April 2012 - 16:55
nikki63 i think we need to chat... heheeh Barry deserves his hugs!!
242
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EW NEWBIE
Latest post on 28 April 2012 - 16:34
Yes it is Dr Barry D P, he reminded me of my Dad, I had to give him a big hug when i left. I will try and find out from the TPA where Dr Maclean now practices in Dubai.
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EW NEWBIE
Latest post on 28 April 2012 - 15:21
Nikki, if your referring to Barry D-P he is an angel.... I have been doing a search and telephoned the green community clinic, and according to them DR Malcolm Maclean left 2 years ago. still trying to get to the bottom of it. If anyone else has some more up to date info, I think everyone would love to hear it.
242
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EW NEWBIE
Latest post on 28 April 2012 - 14:50
Hi Genie Not sure if you are talking about Dr S or Dr P. I saw Dr P, he was absolutley fantastic, I flew back to the UK just to see him. His book is also very good, I would recommend it. It is called How to keep your Thyroid healthy and can be bought from Amazon.
242
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EW NEWBIE
Latest post on 28 April 2012 - 14:44
Hi All The support group I am a member of is Thyroid Patient Advocacy, the web site link is below. http://www.tpa-uk.org.uk/index.php I was being prescibed T4, which is Thyroxine. It was discovered that I was not converting the T4 to T3, which is the active hormone the body needs, therefore why I still had all the symptoms. I now take T3. I'm glad that this information will hopefully help many of you, I would not want people to suffer as long as I did.
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EW NEWBIE
Latest post on 27 April 2012 - 11:32
I am Scottish although i did not think that had anything to do with my underactive thyroid and off the scale anti thyroid antibodies, which has affected many thing including my weight so interested in any info that may help.
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EW NEWBIE
Latest post on 27 April 2012 - 11:08
Hi I was diagnosed with underacrive thyroid around 6 yrs ago. Take thyroxine 75, not had it changed much over the years but would be v interested in speaking to someone about it / support... I'm gmlinds at hot mail dot com Thanks
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EW NEWBIE
Latest post on 27 April 2012 - 00:55
Hello Ladies....I've been hypo thyroid for years now and Last month was diagnosed with Hashimotos Disease also known as chronic lymphocytic thyroiditis. I would love to join and be a part of a support group coz I need it! The whole hypo thrroidism has changed my like completely. My weight gain has become directly proportionate to my self esteem! I've become a loner of sorts and am begining to hate myself. my email is [email protected].
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EW GURU
Latest post on 27 April 2012 - 00:02
I also found this thread interesting ... I've often thought I had a thyroid issue, but like Genie, my results were always "normal". I get most of the symptons and because my results were always fine I thought perhaps I may be peri menopausal (even though my GP ruled that out too).
927
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EW GURU
Latest post on 26 April 2012 - 23:18
I do feel in time the parameters will alter and more people will be treated fo either over active or under active conditions. Like everything it takes time and effort to get things to change for the better. [b'>Too often people are either not diagnosed or are misdiagnosed and have suffered for many years.For women it is frequently confused with other conditions as peri menopause is one of them[/b'>. That would be me then - I really think that and have done for some time (years even). Having "normal" results here put me off persuing it. Should have known better from what my neighbour told me but I never spoke to him about it for some reason! did not like to bother him - although I know he would not have minded as I see him socially every time I go home. It is always the way with science / medicine - those at the forefront are often derided - until their views beccome the accepted norm.
274
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EW NEWBIE
Latest post on 26 April 2012 - 23:03
I do feel in time the parameters will alter and more people will be treated fo either over active or under active conditions. Like everything it takes time and effort to get things to change for the better. Too often people are either not diagnosed or are misdiagnosed and have suffered for many years.For women it is frequently confused with other conditions as peri menopause is one of them.
927
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EW GURU
Latest post on 26 April 2012 - 22:57
I was very interested in this thread. There are many support groups in the UK - this is one of the more informative ones: http://www.thyroiduk.org.uk/tuk/support/tuk_support.html One of my neighbours in the UK is one of the doctors recommended on this site and they also recommend his book. Like the doctor in the OP's post he also fell foul of the GMC but won his case in part due to the number of patients who came forward to support him - he has patients coming from all over the UK and some from as far away as Europe to consult him in his private surgery across the road in our little village. He is a very interesting guy to talk to on the subject, he maintains that so many people are undiagnosed due to the high parameters for treatment set by the UK/ Europe. I have several symptoms but was told here my throid results were "normal". I was going to chat with him about it next time I go home but good to know there is someone likeminded practising here now so I don't have to wait. <em>edited by Genie on 26/04/2012</em>
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EW NEWBIE
Latest post on 26 April 2012 - 21:24
Thanks for sharing this info Nikki63. What is the name of the support group? Do they have a web site? Would u mind sharing what medication you were on then changed to? I have the same issues and would love to do a bit of research on your new meds. If you prefer, you can email me the info at kittycatmason at yahoo dot co dot uk. Thanks.
242
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EW NEWBIE
Latest post on 26 April 2012 - 20:19
Hi McB I am in Dubai. I have taken your number so you can delete it if you want. Just on way out so will call you over weekend. Nikki
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EW NEWBIE
Latest post on 26 April 2012 - 19:47
Your thread I read with interest. Are you in the U A E ? If yes I would love to have a chat with you , my number is Hope to hear from you Nikki63. McB <em>edited by McB on 26/04/2012</em>
 
 

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