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Latest post on 01 July 2012 - 15:04

Hi ladies M_King : Avonex has never been mentioned to me at all, however, when I was diagnosed with MS, the Neuro did say that it was mild & not active at the time of the MRIs. Although it seems there are other tests which can be done ie LP, to tell you the truth I would be scared to have this done, I did go for a 2nd opinion here in Dubai, but the doctor could not confirm unless an LP was done & also the Evoked Potential Test was done also. At the time in March I thought this is going to be test after test, & therefore, I have not done these tests yet or not sure I will do them.It really is a very costly affair having these tests done, but if it becomes necessary then I will have to do them. Its the bottom of my spine that gives me the problems effecting the whole Pelvic area. However, I think the advice which you got from your Doctor is good advice in that the medicine should be taken now so that your 'not that bad' in your 60's or 70's. Are there many side effects from Avonex? quite honestly its the side-effects of medicine (all medicines) that scare me. AmyAus82: My doctor didnt say which type of MS I have, I didn't know that there was different labels to MS ie RRMS etc. I am taking Lyrica, but in a very small dose as the Neuro knows that I have had a bad side effect to the first medicine which he gave to me. The Lyrica dose I am taking is okay for me, I take it at night time so I am not sure how it would be in the day time, I will have to increase the dose at some point, but I will worry about that later, the first medicine was Cymbalta 30MG and it was awful for me, the Doctor was surprised I think, but I suppose our bodies all react differently. After the MRIs were done, I was shown the white lesions on the brain & the cervical spine, but the doctor said it was not active at that time & he was very happy with that & said Steroid Treatment was not required & also he did not 'think' the MS would progress further, whether its because of my age as I said I have been diagnosed later than some people or so he said, although its not unknown for older people to show the disease, but they may have had it for 20 years & it had not shown itself. The Swank Diet is very interesting, I just don't think I can follow a diet but if the need be then I would certainly try. Through Amazon I have book which is written by Judy Graham who also has MS, it is such a great book & I have been able to relate to many of the things she has written about MS. It has helped me understand more about the disease. I also bought the book 'Cooking Well for MS', so many nice recipes & also gives tips when eating out, shopping guides, cooking tips. My diet doesn't change too much, but I have always been careful what I am eating even before the diagnosis, I eat lots of fish especially Salmon & Chicken with lots of vegetables, usually the vegetables are steamed or maybe stir fried with a little olive oil. I take my Fibre especially for breakfast, I usually have porridge (being that I am a Scot) it has always been my favourite breakfast taken with either bananas or prunes. The Neuro advised me to take the Omegas, Evening P.O. D3, Calcium & B Vitamins, so I am hoping that they are helping in some way. M_King & AmyAus : All your information that you are giving me is so interesting to me as I had said I was only diagnosed few months back & therefore, I have to admit I was not knowledgable about MS. With all your information & my books I am certainly being educated about it. It seems there are only so many questions we can ask the Doctors. If you ladies have read any books about MS I would be interested to know there titles, thank you so much.

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