av1998 | ExpatWoman.com
 

av1998

av1998
84
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Latest post on 03 August 2016 - 13:04
Hi, Can anyone tell me which agency/law firm to contact to apply for residency in Canada? Also, have you or do you know anyone who has applied for Canada with a disability and what are the chances there? Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 15 February 2016 - 20:48
Yes I too got a call today saying that the XY clinic has closed down in Dubai and replaced by the Brain Academy which claims to help but no tests for autism. I really was hopeful but its now back to square one sadly.
av1998
84
Posts
EW NEWBIE
Latest post on 14 February 2016 - 13:27
Hi trustgone, I tried calling the XY Clinic and even contacted them via email but there has been no revert. Are you still consulting with them or have they closed down?
av1998
84
Posts
EW NEWBIE
Latest post on 04 February 2016 - 15:14
Thank you so much. This is definitely useful information. I do not know how to send in private messages here or I would send you details.
av1998
84
Posts
EW NEWBIE
Latest post on 04 February 2016 - 09:05
Hi trustgone, I recently went to a support group and someone there was mentioning that her son consults a nutritionist in US who has prescribed some vitamin mixture after she did some tests and she too mentioned the bit about neurotransmitters being different in each child. I cant travel to the US so was wondering about the same availability in Dubai as really the behavior is the main issue with both my kids and if that gets settled, lots of options will open up with them. Can you send me more details on this clinic you mentioned? Are they very expensive? Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 10 January 2016 - 09:34
I too am on the lookout for support group for autism. If you find something, please let me know. Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 10 January 2016 - 09:31
Yes, it upsets me too that my child does not have a place to go to. And in his own way, he is trying to tell me that he needs something. Dubai Autism centre has a wait list of four years. I have registered with them. In terms of Al Noor, I really don't know how well equipped they are in dealing with autism as they have a team dedicated to many other special needs where behavioral issues are very minimal. I used to be part of the Genesis Forum, but that seems to have died down and I do not know of any support group where I could find out something for my children. Thanks for the replies.
av1998
84
Posts
EW NEWBIE
Latest post on 04 January 2016 - 16:58
It can be behavioural therapy, recreational therapy. He isnt going to any school because of aggressive behavior. Many schools outright refuse because of this. Tried one to one therapy but it wasn't successful and very expensive. I have twins with autism. He doesn't have much to look forward to in a day
av1998
84
Posts
EW NEWBIE
Latest post on 23 April 2014 - 11:52
Hi All, My 8 year old son with ASD is developing cognitively and has developed expressive language and communicates using picture cards, gestures, etc. We are currently working on speech therapy for him and his imitation skills are very good and he is trying hard to produce the sounds. However, barring 3-4 phoenics, we haven't been able to make progress. Our speech therapist recommended that we see some specialist who would work on exercising the oral muscles or there could also be a problem with his throat or some other issue which is blocking speech.I had taken him to an ENT last year who confirmed he isn't tongue-tied and a partial hearing test was conducted too, not the full fledged BAER test. Would you know of which doctor or specialist I should see? Or has anyone had a similar experience? I am quite confident that he can speak, but I am not able to pintpoint where he needs help/therapy/treatment. Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 06 March 2014 - 11:39
Yes sorry, a caregiver is the right word. I have two children with special needs and will need help. It will be under supervision from me for a temporary phase, but I dont want them to be neglected and hence I am enquiring. Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 06 March 2014 - 10:48
I think I should have clarified that I need temporary maid services for caring for my children. They are special needs kids.
av1998
84
Posts
EW NEWBIE
Latest post on 20 October 2013 - 12:12
Thank you for all the best wishes & support. It means a lot in these trying phases. Thanks for the note on the talk on Saturday. Weekends are challenging to leave the kids and go somewhere and if I take them, my son is disturbed by loud noises, but I will try. <em>edited by av1998 on 20/10/2013</em>
av1998
84
Posts
EW NEWBIE
Latest post on 20 October 2013 - 09:54
Spinneys has it. I use it for playdough recipe too.
av1998
84
Posts
EW NEWBIE
Latest post on 20 October 2013 - 09:39
Thank you all for your words of encouragement. For years I have been wondering what is the path I should follow for my twins. When I learnt about autism 6 years ago, it was an unfamiliar world, I was depressed, was chasing the deadline of 6 years one neurologist had told me was important and I just wanted to try every possible thing to make things better for the boys. With my second twin Krish, there were tantrums, but everything used to fade out and be replaced with something else and he showed little signs of progress. I was financially burdened with the expenses, emotionally drained trying to explain to my family members why it is necessary to keep trying and went from one centre to another, one therapy to another. And since last year and a half Krish is progressing at a rapid rate which I am so thankful for. With my first twin Ishaan, it has been a fight for survival for him from the day he was born with surgeries for his intestine, then a dental surgery, food issues, most recently a major surgery for his intestine. In all this, he has become aversive to food, doesnt want to do anything and I think the frustration with all this is coming out in his behavior. He has been out of therapy since October last year and after his surgery in Jan this year, I attempted sending him for therapy from April, but its been 6 months and there has been no change and really I have been telling the therapists to just focus on daily living activities and nothing else. He loves going out and hence I thought outside therapy will give him a chance to be out. But recently his self injurious behavior is so much that everything is impossible. I am a very a strong woman and inspite of lots of resistance at home regarding trying things for the kids (yes, my struggle is not only with the outside world when it comes to kids, I face the same at home too, but now I am immune), I still continued to try for Ishaan. But his self injurious behavior with bleeding little hands, beating his head with his hands, beating his torso has broken me. I cant see my child go through torture and have been thinking that I should just stop therapy and let him live in peace and be happy. I have really tried with PECS, sign language, basically any means by whih he can communicate, but nothing has been working. Recently, parts of the day when he is calm, I have been talking to him, telling him to give me a sign as to what he wants and I will do that for him. Even daily living is a challenge for him right from waking up, brushing, showering, etc. He bites himself and others for everything and in that time, we cant be near him to console him as he further gets agitated. So all I can do is watch him while he injures himself and sometimes intervene. I make him wear arm socks to reduce the impact of biting, but eventually he removes those as well. He is so cute when he smiles but it seems like he just angry and frustrated with everyone. Taking the decision on therapy or not is a dilemma for me as I feel if I stop it, means I am giving up on him and I don't want to do that. In this state, I have neglected Krish as well. Result being, I am not useful for any kids if mentally I get down. I need to decide something for Ishaan and see him at peace with himself and others and just be happy and I think that could be the best birthday gift I could give him next month. Thank you Desert Rose, a weekday would be good.
av1998
84
Posts
EW NEWBIE
Latest post on 19 October 2013 - 15:21
Hi, I have written on this forum many times asking for help for my 7 year old twin boys on the autistic spectrum. I keep on trying for the kids and sometimes there is progress, sometimes not. One of my sons is progressing. But sadly my other son Ishaan isnt. I have read about children not being able to cope and their parents force them as they think thats best for them. Ishaan has been in therapy since he was 3 years old and he hasnt progressed. He has become so violent that he does not want anyone near him and starts biting himself, others or hits his head against the wall. He does not want to go to school and isnt interested in eating, meal times are pretty tough on him but he has to eat. He just prefers staying by himself lying down. I have tried bringing him out of this isolated life, tried sensory integration, tried various schools and he even had a surgery in jan this year for his stomach issues, but life hasnt changed for him. I am now at a stage where forcing him for anything is reducing me to tears as he is crying or biting and hurting himself. I dont know whether i shud continue sending him to school where also he is biting himself and therapists or let him be at home and just let him be taken care of. As parents we have big dreams and not sending to school or therapy is something i dont feel too good about, but i dont want to traumatize him. Please tell me what you think, i am emotionally disturbed and unable to decide what is the right step here
av1998
84
Posts
EW NEWBIE
Latest post on 11 September 2013 - 08:29
Thank you Desert Rose. When you talk of family affair and all on board, sadly no one in my family is on board. My husband does not get involved with details. All therapies, behaviors, decisions are mine. My inlaws dont want to do wht i tell them in terms of managing behavior. Frankly my nanny is the only one on board, but thts not enough and I can see that she is getting tired. Managing two spl needs kids is a big task and when she joined us 6 yrs ago, the kids were not diagnosed. Things r changing now and she isnt a family member, so I was looking at the options to provide help for her to manage kids. Our financial situation is such that leaving my job currently is not possible though I really too have thought of that several times. To keep a nanny, get kids therapy and run a house with inlaws, I have to work as even if i dont work, inlaws will still be there and i will still need a nanny and therapy. I guess I sound confused but I m really worried. My nanny is attached to the kids and she takes good care of them in my absence. I wont get another nanny like her or can I? Or should i get a therapist on my visa till I am ready to quit my job. How do u manage? Do u have someone to help out?
av1998
84
Posts
EW NEWBIE
Latest post on 31 August 2013 - 09:54
Thanks desertrose. I had taken a week off from work and got OT started for both my children. Kids in Motion has been really helpful in taking this forward and I am hoping go make some progress soon. There is a lot of oral sensitivity for my other son and he wants to play with his saliva and jump and scream. I understand now that this is also a sensory need. I was on the wrong path, thanks for your guidance in the right direction.
av1998
84
Posts
EW NEWBIE
Latest post on 13 August 2013 - 13:33
Thanks Desert Rose. Let's see what we can work out next month based on our schedules. Weekends are normally ok, but sometimes too many things to be done with kids and I can't seem to get out esp if their nanny goes out. In the meantime, could you help me with how to set up a structured day? Any websites I can use?
av1998
84
Posts
EW NEWBIE
Latest post on 12 August 2013 - 19:04
Hi DesertRose, do you live in Dubai? You have a lot of knowledge and experience in autism. I would like to meet you some day. Have asked Kids in Motion to let me know regarding sensory integration and I am also looking at the same for my other son as I thought he was hyper but now I view it differently and was thinking of setting up schedules for him so he hets his sensory input. I am a working mom so I do rely on others for many things as otherwise I cannot afford the therapy. But i really would like to structure the day for my son like you. I have ten days of leave coming up and so does my son. This would be the best time to do this. Do give me some idea on this or any links or if we could meet. Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 11 August 2013 - 09:51
DesertRose, when you talk about what is scheduled for your son in the day, do you mean that you ahve his whole day structured? Does that make our kids feel better? Also, I do know that you had once mentioned that your son was non-verbal and suddenly at 9 years when he started talking, you realized that he was soaking everything you had been working on for years. Your example is what I keep in mind everyday that there is hope that my children will start talking some day. Can I ask you what helped your son become verbal? Was it a good speech therapist or PECS or did you work with him on something?
av1998
84
Posts
EW NEWBIE
Latest post on 11 August 2013 - 09:40
These posts have really opened up a lot of possiblities where I can try to help my son which I didn't even know existed. I will definitely read up on these. Till now I was focusing on his intestinal issues which thankfully got resolved after the surgery and then was only reading up or talking about sound sensitivity. This also now makes me wonder about my other son who has recently started a lot of jumping, screaming and spitting. I am meeting an OT next week to see how we can channelize/substitute these things and schedule timings during the day for the same so he gets the sensory input he needs. I do understand that these children are only trying to cope in the best way they can and some things can be scary for them. I will write here on what I see and after meetings with specialists. Please guide me in any way all of you can. Thanks once again.
av1998
84
Posts
EW NEWBIE
Latest post on 10 August 2013 - 10:37
Thank you all for your inputs. I never really saw that it could be a sensory problem as a whole. I just see him react to sounds and recently in jan this year he has had a major surgery for his intestinal issues so i can see a difference between his whining and real tears. I read on the net that this is because of the pain certain sounds cause him. But this whole thing of different sensory issues may well be true as he has recently even started removing his clothes and thats the tactile bit. My other son is on the spectrum too but he is more complaint. We have to keep telling him to keep noise down as his brother gets affected and bites his own hand, but he is a child too. My son with the sound issue is going to kids in motion at healthcare city and they identified his sound sensitivity as the major issue and recommended the ease program as part of his day learning program where he started from april this year. He refuses to even come near the ipad when he sees the headphones and ease program at home. I will speak to his thearpists and see how they can help with a sensory diet. He is quite rigid in his routines, so i am not looking to change his centre just yet. But i def will keep Kids First in mind where i have gone for the makaton sign language course. Is an occupational therapist the right person who can help here or would it have to specifically be a sensory integration therapist? Both my kids are non verbal so I go by instinct on what their possible issue could be. Its helpful to get other points of view on this.
av1998
84
Posts
EW NEWBIE
Latest post on 09 August 2013 - 13:40
Thanks, do you know of any sensory integration specialist I could consult? And where could I get a white noise machine? Your idea of social stories is nice but I really dont know if my son will understand it as he is cognitively not that advanced.
av1998
84
Posts
EW NEWBIE
Latest post on 09 August 2013 - 13:29
I have visited Senses and its a beautiful place with different area for boys and girls, well equipped classrooms and caring staff. U can ask them and they have a wish list which is mostly for eatables, washing powder, toiletries etc. They have a huge waiting list, but if some child is abandoned, they take them under their care. Its touching wht all they do. <em>edited by av1998 on 09/08/2013</em>
av1998
84
Posts
EW NEWBIE
Latest post on 21 May 2013 - 16:05
I stay in the Golden Sands Area, so was looking for something around here or near SHeikh Zayed Road.
av1998
84
Posts
EW NEWBIE
Latest post on 21 May 2013 - 16:04
Thanks for the information. I will contact them.
av1998
84
Posts
EW NEWBIE
Latest post on 21 May 2013 - 15:58
I am really very confused with two issues. Any suggestions are welcome as I ahve researched on the internet and reached no conclusions. I have 7 year old twin boys on the autistic spectrum. First Issue - One son is progressing cognitively, yet there hasn't been much progress in speech, just been two months but the speech path insists on giving me the language pyramid and receptive skills etc and sign language but does not work on vocalization. It baffles me as to why this approach? He does produce sounds so why not work on that? I took him to a speech path years ago in community health centre and they said he is not ready and needs sitting tolerance and should progress cognitively. Now when that is achieved, this speech path has other ideas. I ahve heard of lots of children gainign speech at 9 years or more, but I still don't know what is the right path and how will I know that I am sending my son to a place which is helping him? Second Issue - My other son had many medical issues, had a major surgery this year and now is settling in but is highly sensitive to sounds. OTs are recommending desensitizing to sounds or use of headphones, EASE program, etc. Do these things work? This is a major issue as certain sounds lead to tantrums and as he is getting older it is difficult to manage him. Thanks
av1998
84
Posts
EW NEWBIE
Latest post on 21 May 2013 - 15:46
Can I have some details on Developing Child Centre? I am really confused about Speech Therapy for my 7 year old child on the spectrum. All that is being done is sign language and I don't know how effective that will be to promote speech as they are not working on vocalization. ANy ideas here regarding Speech?
av1998
84
Posts
EW NEWBIE
Latest post on 04 March 2013 - 12:44
Thanks for the replies. Daiso has it? Great. Jenni, this is a plastic or cardboard folder where you place your shirt or tshirt and you have to fold the flaps one by one and the shirt gets folded. I have two boys on the spectrum and was told about this recently. Really nice one.
av1998
84
Posts
EW NEWBIE
Latest post on 11 February 2013 - 14:14
Has anyone tried out the services at Kids in Motion? I am looking for something for my autistic son as well.
av1998
84
Posts
EW NEWBIE
Latest post on 01 July 2012 - 09:26
The search has come up with various recommendations where medication is required. I don't need medication. Maybe what I am looking for is counselling and how to cope with the emotional problems in my life and not breakdown so easily.
av1998
84
Posts
EW NEWBIE
Latest post on 01 July 2012 - 09:13
Thanks. I was looking at someone who could help me deal with emotional issues.
av1998
84
Posts
EW NEWBIE
Latest post on 01 July 2012 - 08:39
Any recommendations for a good psychiatrist in Dubai?
av1998
84
Posts
EW NEWBIE
Latest post on 13 June 2012 - 15:09
No, my parents live with my brother and his family and there isn't space for me, kids and maid. Actually in most cases, people can adjust, but since my kids are special needs, they can't adjust everywhere and need lots of things adjusted for their sake.
av1998
84
Posts
EW NEWBIE
Latest post on 13 June 2012 - 14:57
Thank you so much all of you for hearing me out. Sometimes just talking about things does make you feel better and I really can't talk much to anyone and even if I do, I do know that until I can financially support my kids, there isn't much of a way out. Yet, I am trying, a miracle may happen or someone can help me cope. I have had many sleepless nights or cried myself to sleep and I am trying to remain positive and strong, but sometimes I just cant. Talking to my inlaws has been tried and tested, its no use. My parents stay in Dubai too as I have been brought up here as well and they have tried too, but what eventually happens is that my inlaws and parents end up arguing as each want to side thier child and I am left to deal with those issues and the real issue of my abuse and my kids' future gets sidelined. Can't go and stay with anyone either as my kids are special needs and need certain routines, articles in their daily lives and those cannot be disturbed or they get very upset. Years ago, when this abuse was a little, I thought it was just some comments, just sarcasm and I didn't even realize how it crept in full time in my life. I have tried talking to my husband many times but it never worked and I always feared that it would have an ugly end and didn't want that. And I kept on compromising to avoid that. But with the kids growing up and him totally ignoring them and treating me badly, even compromise is difficult as the scars are way too many. Today I don't have the fear of an ugly end, so I have stopped going out of the way to compromise like the past and if we don't talk to each other for days together, I leave it. He used to make me feel guilty for that too and make me beg him to talk to him so he feels superior and belittles me in front of everyone. Yes, christelkoko, we have only one life. I too have immersed myself fully in the kids and the support group meetings and outings with them. Thankfully I am blessed with a great maid who understands and helps me in every possible way otherwise going out with kids alone is not possible. And I am sure that if I ever can support kids myself and ask for a separation, my spouse too will be shocked. Its like they think that we cannot go on without them. He has promised, said sorry so many times and gone back to all this. And these days, he does not even apologize or feel bad for what all he has done. Thank you once again. I am glad I have some place I can talk about this.
av1998
84
Posts
EW NEWBIE
Latest post on 12 June 2012 - 15:29
My inlaws blindly love their son and have expected me to adjust/compromise always. At this stage too, they are doing nothing and eventually all will end up telling me that husband should be treated well and given more attention. Sadly this is how indian society is. Getting help from any family members is out of question. I am exploring possibilties of getting some sponsorship for my kids or something so I can decide something once the finances are taken care of.
av1998
84
Posts
EW NEWBIE
Latest post on 12 June 2012 - 15:25
My inlaws have seen what is happening, yet they haven't sat down their son to stop all this or seek professional help. They talk about it in passing remarks and get on with their own lives. My kids and me are the only ones getting affected.
av1998
84
Posts
EW NEWBIE
Latest post on 03 June 2012 - 12:19
Thanks, I just called them and got an appointment with Dr. Ursula for next week and thank god they accept insurance for consultation atleast. Based on the outcome, can see if they accept the insurance for tests as well. Thank you so much all of you. I am hoping this is the answer for my son. God Bless
av1998
84
Posts
EW NEWBIE
Latest post on 03 June 2012 - 11:26
Northwest Clinic does not accept insurance. Am looking up Dr. Ursula at healthbay now. Costs are an important factor as I have autistic twins. I checked Welcare & Medcare list of doctors. Didn't find any Dr. Dinesh. Is he a visiting doctor there? Also Schatzi, which hospital is she from? Trying to look for a hospital which accepts insurance or will go with one of thes doctors in the end.
av1998
84
Posts
EW NEWBIE
Latest post on 02 June 2012 - 20:28
Thanks for all the recommendations. I will look these doctors up and see how they can help my autistic son. He is not eating and i suspect some stomach issues. I had a ref of a doc in ghusais, but they want a ref fm their child specialist and its not convenient to keep going there fm mankhool all the time. Just need a doctor who is patient cos many doctors r insensitive to autism and my child cries a lot at times.
av1998
84
Posts
EW NEWBIE
Latest post on 26 April 2012 - 08:27
Thanks, will check out Union Co-op
av1998
84
Posts
EW NEWBIE
Latest post on 25 April 2012 - 14:26
:) Have actually done that for the past three weeks. Not the whole roll, just a few bags. Actually my son who is autistic likes the textrure of that bag and we cut them out into long strips for him to calm down and hence I have been searching for these.
av1998
84
Posts
EW NEWBIE
Latest post on 23 January 2012 - 15:57
Amy, I don't know which agencies to contact. I have already sent requests to their school to find out what options are available.
av1998
84
Posts
EW NEWBIE
Latest post on 23 January 2012 - 15:04
I can't take the whole time off due to work constraints and there will be either me or my husband at home. So it won't be unsupervised at any point. But we do need a helping hand in little things here and there.
av1998
84
Posts
EW NEWBIE
Latest post on 12 October 2011 - 12:56
Have already copied it. You can delete it.
av1998
84
Posts
EW NEWBIE
Latest post on 12 October 2011 - 12:46
This site is blocked here by my office server. Will try from home this evening. Thanks so much.
av1998
84
Posts
EW NEWBIE
Latest post on 12 October 2011 - 12:07
Can anyone help me to procure the ME book by Ivar Lovaas? Amazon & Barnes & Noble cannot ship to UAE and locally I can't seem to find it. Or if anyone has it and wants to sell it to me? Thanks for your help.
av1998
84
Posts
EW NEWBIE
Latest post on 10 October 2011 - 10:22
My twin boys soon to be 6 in November have ASD. However, till date, I haven't been able to get the correct diagnosis for them. There have been assessments done at various organizations, but those are reports not giving a clear picture. Both my kids are differently abled, yet I have kept same therapies for them. It could be that they may not be ready for something and I am forcing them and that is leading to frustration and tantrums? Each time I visit a doctor or talk to a therapist, they ask me what is the diagnosis and I know its autism, but I don't know is it classical autism or autism with something else? I have heard of speech delays, PDD, ADHD, aspergers. In Dubai, how can I find out where my kids lie on the spectrum? Are IQ tests conducted? Can someone please help me to find this out?
av1998
84
Posts
EW NEWBIE
Latest post on 07 June 2011 - 12:44
Where do you get No. 7 and MAC products in Dubai, didn't see them at Paris Gallery
av1998
84
Posts
EW NEWBIE
Latest post on 07 June 2011 - 12:39
Thanks Desert Rose, any ideas are welcome. Let me know when you are back on [email protected]
 
 
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