Nephrotic Syndrome | ExpatWoman.com
 

Nephrotic Syndrome

829
Posts
EW GURU
Latest post on 17 January 2011 - 11:53
:) OK well we won't tell her how he bit a chunk out of his sister's leg this morning then! ;)
53
Posts
EW NEWBIE
Latest post on 17 January 2011 - 11:46
I know some of you know our story so update... Reagan is now on Prograf. It's an immunosupressant given to transplant patients to prevent rejection of the transplanted organ. (She didn't have a transplant but her body was mimicking organ rejection and rejecting her kidneys) She has been on since the end of August and her kidneys have been functioning normal since about a week after the first dose. She is also now on a very low dose of prednisone. So, she is down from 6 medications multiple times a day to 4 pills per day. At age 3 she swallows the pills with no liquid!!!! Fingers crossed that she continues this way because if so, she will be weaned off in another 2 years and only started again if her kidneys stop functioning properly. Thanks again for all the advice and good thoughts sent her way. And she's a darling! ;) She told daddy about how little Harry shares so well and that Parker needs some lessons!!! :) <em>edited by GoddessUli on 17/01/2011</em>
829
Posts
EW GURU
Latest post on 17 January 2011 - 11:12
I know some of you know our story so update... Reagan is now on Prograf. It's an immunosupressant given to transplant patients to prevent rejection of the transplanted organ. (She didn't have a transplant but her body was mimicking organ rejection and rejecting her kidneys) She has been on since the end of August and her kidneys have been functioning normal since about a week after the first dose. She is also now on a very low dose of prednisone. So, she is down from 6 medications multiple times a day to 4 pills per day. At age 3 she swallows the pills with no liquid!!!! Fingers crossed that she continues this way because if so, she will be weaned off in another 2 years and only started again if her kidneys stop functioning properly. Thanks again for all the advice and good thoughts sent her way. And she's a darling! ;)
53
Posts
EW NEWBIE
Latest post on 17 January 2011 - 11:03
I know some of you know our story so update... Reagan is now on Prograf. It's an immunosupressant given to transplant patients to prevent rejection of the transplanted organ. (She didn't have a transplant but her body was mimicking organ rejection and rejecting her kidneys) She has been on since the end of August and her kidneys have been functioning normal since about a week after the first dose. She is also now on a very low dose of prednisone. So, she is down from 6 medications multiple times a day to 4 pills per day. At age 3 she swallows the pills with no liquid!!!! Fingers crossed that she continues this way because if so, she will be weaned off in another 2 years and only started again if her kidneys stop functioning properly. Thanks again for all the advice and good thoughts sent her way.
 
 

ON EXPATWOMAN TODAY