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Children & epilepsy

153

Posts

EW NEWBIE

Latest post on 18 February 2011 - 12:58

Hi

My DD - 18mths has been diagnosed with epilepsy. Was wondering if there are any other mums out there with kids with epilepsy. Would be interested to hear your experience about the different medicines and Dr's

Thanks

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153

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EW NEWBIE

Latest post on 19 February 2011 - 12:40

Hi Pingu We actually picked it up at 14months and our peds referred us to Dr Kayed. She is on Keppra but its not working so we have introduced Toppamax now and are hoping this works so we can take her off the keppra. At first the toppamax was making her sleep for only 6hrs on 24hrs but now 3 weeks on she has settled. Unfortunately still having mild seizures so we are in the middle of increasing again - sleepless nights and crazy days :) Dr Kayed is lovely. We did see Dr Udani who visit from Indian at Welcare just as a second opinion. Same diagnosis so will stick with Dr Kayed for now. Really hope to get it all under control and it seems to be affecting her developmentally but at the moment trying to stay positive and take it a day at a time. DD is our first child and neither of us have a history in our family's - just one of things. Been a learning curve for both of us dealing with her seizures and now the medicine and affect it is having on her. Just trying to stay positive and hope we get the dosage right. How do you go getting her to take her meds? I have just found a pharmacy that will compound the tablets to syrup for me which takes some of the stress of. :)

493

Posts

EW EXPLORER

Latest post on 18 February 2011 - 13:19

Hi Missymoo, My DD was 18 months when she was diagnosed, she is now 3 and a half. Been seeing Dr Kayed for 2 years now here in Dubai. She is on her 3rd different type of med, first one back home, second with a new Dr here in Dubai, and 3rd with Dr Kayed. She's on Trileptal now. Initailly she used to have full on tonic clonis seizures (foaming, rigid, shaking, blue in the face, stopped breathing) thankfully all it is now is more absent seizures and sometimes rigid, sometimes blue. How you coping? It's terrifying I know. If you want to chat, let me know x

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