For those of you who knew me as QoD or TBM | ExpatWoman.com
 

For those of you who knew me as QoD or TBM

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EW NEWBIE
Latest post on 17 January 2011 - 11:06

I know some of you know our story so a quick update since I'm not on much anymore... Reagan is now on Prograf. It's an immunosupressant given to transplant patients to prevent rejection of the transplanted organ. (She didn't have a transplant but her body was mimicking organ rejection and rejecting her kidneys) She has been on since the end of August and her kidneys have been functioning normal since about a week after the first dose. She is also now on a very low dose of prednisone. So, she is down from 6 medications multiple times a day to 4 pills per day. At age 3 she swallows the pills with no liquid!!!! Fingers crossed that she continues this way because if so, she will be weaned off in another 2 years and only started again if her kidneys stop functioning properly.

Thanks again for all the advice and good thoughts sent her way.

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EW EXPERT
Latest post on 17 January 2011 - 16:13
Thank you ladies!! It's been a long road but one full of growth and knowledge too! Hopefully one day I will be able to use what I've learned about her rare disorder to help someone else! This is just one of those things that makes you so special K. ALWAYS with a beautiful smile on your face and always finding the positive in the rough trot you and your family have been dealt over the last year or so. MUCH love to you all. xxx
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EW GURU
Latest post on 17 January 2011 - 16:10
Great to hear from you, I have been wondering what happened to you. Glad to hear things seem to be improving, you deserve a break after what your family has been through. Not sure if you are here in Dubai or in the States but if you are here my offer of help for is still open. Saltire aka Haggis.
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EW NEWBIE
Latest post on 17 January 2011 - 16:00
I thought I recognized you from some of your posts :) Thanks so much for the update - I'm not on much either these days, but I always think of you and your little ones. I'm so glad your DD is doing much better (touch wood). Thanks r3! It's nice to be in the place we are now. Nicer still if and when we aren't in the place at all!!! True - but our plans are not necessarily "the" plans for our lives and there are lessons to be learnt in all the hardships that we face. Thankfully yours ended happily and as you said, you now have the wisdom and knowledge to help others - that's what it's all about :)
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EW NEWBIE
Latest post on 17 January 2011 - 15:56
I thought I recognized you from some of your posts :) Thanks so much for the update - I'm not on much either these days, but I always think of you and your little ones. I'm so glad your DD is doing much better (touch wood). Thanks r3! It's nice to be in the place we are now. Nicer still if and when we aren't in the place at all!!!
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EW NEWBIE
Latest post on 17 January 2011 - 15:54
I thought I recognized you from some of your posts :) Thanks so much for the update - I'm not on much either these days, but I always think of you and your little ones. I'm so glad your DD is doing much better (touch wood).
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EW NEWBIE
Latest post on 17 January 2011 - 13:32
Thanks Meals..rest at night we do! Parker is sleeping 13-14 hours nights and she does 10 easily. Finally, the break we needed!!
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EW GURU
Latest post on 17 January 2011 - 13:22
Fantastic news :D I hope you can finally rest a little easier at night and relax a little more yourself... well done mummy!!!
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EW EXPERT
Latest post on 17 January 2011 - 13:12
Brilliant news, Reagan is so adorable, a very beautiful little girl. xx She asks for you Sal. xx Awww does she, well we must do something about it!!!!! will email you. xx <em>edited by salsB on 17/01/2011</em>
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EW GURU
Latest post on 17 January 2011 - 13:05
Lovely news, am glad to hear things are going well. Hugs to you all.
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EW NEWBIE
Latest post on 17 January 2011 - 13:04
Brilliant news, Reagan is so adorable, a very beautiful little girl. xx She asks for you Sal. xx
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EW EXPERT
Latest post on 17 January 2011 - 12:59
Brilliant news, Reagan is so adorable, a very beautiful little girl. xx
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EW EXPERT
Latest post on 17 January 2011 - 12:57
Lovely to hear your news, Reagan and her Mum are tough cookies and it is wonderful to hear she is making such good progress. Check in once in a while with us here at EW and look after yourself and your little ones. CPxx
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EW NEWBIE
Latest post on 17 January 2011 - 12:54
Thank you ladies!! It's been a long road but one full of growth and knowledge too! Hopefully one day I will be able to use what I've learned about her rare disorder to help someone else!
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EW EXPERT
Latest post on 17 January 2011 - 12:52
so good to have an update - I hope she continues to do well. It's been a very stressful journey for you all but so pleased to hear she's on a good track. she's got a very strong Mummy! well done!
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EW MASTER
Latest post on 17 January 2011 - 12:52
Nice to hear from you again. Good luck to the little one.:)
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EW OLDHAND
Latest post on 17 January 2011 - 12:51
That's such good news. I bet you are pleased. What a little trooper!!!
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EW NEWBIE
Latest post on 17 January 2011 - 12:48
That's great news QOD. Have you gone back to the US permanently or can you resume your life in Dubai now? It's been a while since I've been on here. (Cracked my addiction :) ) We arrived back in September and Reagan has biweekly appointments with the Nephrologist to ensure she is on track. The medication can be toxic if the dose is too high so we are on constant blood draws..that is the price we pay to have her healthy though right?
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EW NEWBIE
Latest post on 17 January 2011 - 12:46
That's great news QOD. Have you gone back to the US permanently or can you resume your life in Dubai now?
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EW GURU
Latest post on 17 January 2011 - 12:23
Was thinking of you and Regan just yesterday. So happy to hear the good news. Fingers crossed things just keep getting better and better. All the best. X
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EW NEWBIE
Latest post on 17 January 2011 - 12:19
She is indeed such a brave little girl. Many positive well wishes for her complete and speedy recovery.
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EW NEWBIE
Latest post on 17 January 2011 - 11:49
Hi QoD, I am very happy to hear about ur LO. Pray that she completely recovers from this. Regards to you
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EW NEWBIE
Latest post on 17 January 2011 - 11:43
Hi QoD - so glad to hear nice news! Hope you are looking after yourself as well!!! Trying wikkid...hard to do with two little ones :-)
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EW NEWBIE
Latest post on 17 January 2011 - 11:15
Hi QoD - so glad to hear nice news! Hope you are looking after yourself as well!!!
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EW NEWBIE
Latest post on 17 January 2011 - 11:14
Thanks ladies!!! She is such a strong little girl. Amazes us every day!
Anonymous (not verified)
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EW NEWBIE
Latest post on 17 January 2011 - 11:12
fantastic news Queen! very best wishes to your brave little girl. x
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EW OLDHAND
Latest post on 17 January 2011 - 11:10
That is WONDERFUL news.
 
 

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