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Testing for Downs syndrome.

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247

Posts

EW NEWBIE

Latest post on 26 March 2011 - 13:56

Gogi, I felt the same dilemma when given the option of the test. It was not going to change our decision of having the baby, so I decided not to get the test done. Why worry about something you have little control over. Enjoy your pregnancy and have faith, you will have a healthy, happy baby - touchwood!

7

Posts

EW NEWBIE

Latest post on 25 March 2011 - 12:59

People need to understand why those tests are used. The risk of chromosomal abnormalities increases gradually as the mother's age increases. Not long ago, the recommendation was that anyone over the age of 35 have an amnio. The reasoning was that at that age, the risk of miscarriage from the amnio equals the aged-based risk of the baby having Down's. Then recently they found that the blood test and the nuchal fold scan results could determine the risk more accurately than age alone. So in many cases, the results save older women from having unnecessary amnios. I had my last baby when I was 37, and after the tests my risk was the same as the age-based risk of someone in their early 20s. But if you have already decided that you will not have an amnio for any reason, then the tests are pointless. And remember, a risk of 1 in 10 is considering high--but it still means that 90% of the babies are fine!

112

Posts

EW NEWBIE

Latest post on 25 March 2011 - 11:20

Thanks Gogi I think I will definitely opt against it.

95

Posts

EW NEWBIE

Latest post on 25 March 2011 - 11:00

Hi Maariyah.- This might make you feel even better.- My gyne herself has never tested at any of her pregnancies though she did have the choice. She said if we are young and healthy there is nothing to worry. Mid thirties is still young!! :)

112

Posts

EW NEWBIE

Latest post on 24 March 2011 - 20:11

this was also going to be my next question but luckily I found an old thread on it. I am also faced with this dilemma, age being my only fear (mid thirties) apart from that I don't have any family history etc but just anxiety as with most mums to be... I think bottom line is as with other posters It wouldn't make a difference to me and I would continue my pregnancy anyway, so that i think should be deciding factor in not having this test, I think..

95

Posts

EW NEWBIE

Latest post on 09 March 2011 - 21:41

Thanks ladies, I felt the same way but a lot of people and especially the doctors encouraged me to take the test. Anyway, i didnt! Yasmine...this was my biggest fear too( of not beleiving the result and then worrying about it the whole time) and we decided that we would go ahead with the pregnancy in any case so whats the point. Nutty i totally agree with your thoughts too.

914

Posts

EW GURU

Latest post on 09 March 2011 - 17:09

You would love it just the same so why bother, not much you could do about it anyway....

123

Posts

EW NEWBIE

Latest post on 09 March 2011 - 11:50

I had a 1 in 11 chance on Down syndrome and spent my whole pregnancy depressed and down and scared. I had a miscarriage before and took us 3 years to get pregnant so we were to afraid for invasive testing because of the risk of miscarriage. My baby boy was born healthy so I suffered for nothing, I wish I never did it to be honest. I even wish I didnt know that test existed, it made my life miserable.

4747

Posts

EW MASTER

Latest post on 08 March 2011 - 21:47

I have heard its only a percentage of risk that is predicted and it isnt accurate. Any thoughts on the subject? it depends on the individual. my bloods came back as very high 1:3 for my age, whereby high is 1:100, so really i had no choice but to do the amino test! there is a risk of the amino etc, but if you have a 1:3 do you really have a choice?, it really depends on what the number will be, and in the end did I have a child with downs, no, although I do think that the body was perhaps saying something as I did have a child born with other severe problems that are fairly rare and required a lot of medical help/operations.

happymommy22180

74

Posts

EW NEWBIE

Latest post on 18 January 2011 - 15:12

The result will only give you a probability. e.g.: 1:800 chance of the baby having DS. It's very hard to interpret these numbers and what will be ok for one person might seem like a big risk to somebody else. Also the testing itself, which consists of nuchal scan, bloodtest and age, depends a lot onto who performs the scan. Only the amnio can give you a pretty accurate result. But in itself it bears the risk of a miscarriage even if the baby is perfectly healthy. If you wouldn't terminate the pregnancy in case of a high probability, I would not do the test. It could only cause you unnecessary worry.

95

Posts

EW NEWBIE

Latest post on 18 January 2011 - 14:30

Thanks LG... I feel the same way as you do. I dont think it will make a difference to my decision on continuing the pregnancy. I might freak out just doing the test wondering if the result was accurate or not!

14

Posts

EW NEWBIE

Latest post on 18 January 2011 - 08:21

Hi I was pregnant with twins and the doctor told me that if we did the non invasive test and it came back positive, then he would have to do an amnio. With double the hormones this was a likely outcome but did not mean that it was definitely a positive result. I decided against it as it wouldn't have made a difference to continuing with the pregnancy. May be worth checking the procedure with your doctor. Also, would you end up freaking out if the test was positive and spoil a lovely time or would you worry more about not knowing?

95

Posts

EW NEWBIE

Latest post on 17 January 2011 - 20:39

I have heard its only a percentage of risk that is predicted and it isnt accurate. Any thoughts on the subject?

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