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ewmoda

leaky gut syndrome

41

Posts

EW NEWBIE

Latest post on 27 July 2011 - 11:05

After countless doctor visits, various specialists and their recommended tests I saw a doctor yesterday who said I have all the symptoms of leaky gut and should do some more tests to confirm this costing another few thousands. This is so confusing with all the doctors requiring different tests and the treatment not working. I know i have lots of food intolerances and barely eat anything these days due to not knowing what I'm allergic to and what not as I have done different food intolerance tests which work for a while and then I develop an intolerance to which is mostly severe digestive distress.
Has anyone experienced leaky gut? Any doctor recommendations for this syndrome? I did try and search here and Dr Heather came up a lot but more for food intolerance testing rather than treatment for leaky gut? Any advice/experiences would be much appreciated.

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822

Posts

EW GURU

Latest post on 11 August 2011 - 21:51

Jillp - I'm very much here. Would love a holiday but sadly DH cant leave :( Ooops, I must have just thought you needed a holiday. ;)

671

Posts

EW GURU

Latest post on 11 August 2011 - 18:20

Yup Purple beat me to it! Phone 050-9643445. Apparently she's on holiday for another week.

1247

Posts

EW OLDHAND

Latest post on 11 August 2011 - 14:54

DrJessica@ AvicennaLogics.com . Website here http://avicennalogics.com/ no spaces in the email obv :) <em>edited by Purple on 11/08/2011</em>

3

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EW NEWBIE

Latest post on 11 August 2011 - 13:33

ok queenbee, please keep me posted. Will await the details of Dr. Jessica Rand and might call her.

41

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EW NEWBIE

Latest post on 11 August 2011 - 12:37

Jillp - I'm very much here. Would love a holiday but sadly DH cant leave :( Florian - Its a nightmare finding the right practioner here as everyone has a different opinion on leaky gut. I have been doing my tests with Dr Heather Eade and awaiting my results as it usually takes about 3 weeks. In the mean time I'm off all the common allergens - gluten, dairy, corn and nuts.

671

Posts

EW GURU

Latest post on 10 August 2011 - 22:19

Hmm...I'll ask my friend!

3

Posts

EW NEWBIE

Latest post on 10 August 2011 - 21:43

Dr Jessica Rand is the one I referred to earlier in the thread. Thank you! Any hospital name or contact details. When I google her, i only find information about her doing veterinary duties for horses....

671

Posts

EW GURU

Latest post on 10 August 2011 - 19:33

Dr Jessica Rand is the one I referred to earlier in the thread.

822

Posts

EW GURU

Latest post on 10 August 2011 - 17:07

florian - I think Queenbee is on holiday just now - maybe bump this post in a week or so.....

3

Posts

EW NEWBIE

Latest post on 10 August 2011 - 14:44

Hello Queenbee, I guess I suffer as well from Leaky Gut Syndrome, but so far no one was able to diagnose or offer treatment in Dubai. Please let me know if you come across someone... thanks, Florian

41

Posts

EW NEWBIE

Latest post on 04 August 2011 - 14:18

terribe_twos - I asked the doctor to have the complete celiac profile done but was told that it is irrelevant as my previous blood test came back negative and so did the endoscopy results but I have decided to go off gluten completely anyway. The functional medicine practitioner has recommended some more tests as the candida test came back positive - awaiting the results which could take 2-3 weeks as they go to a lab called Genova in the UK and in the mean time has prescribed magnesium, omega,zinc n a whole load of supplements and completely off gluten,dairy,corn, all the possible allergens so hoping this time round something helps.

374

Posts

EW EXPLORER

Latest post on 29 July 2011 - 11:24

If I could maybe ask one more question. Would it be okay to take a laxative during one of these attacks? I'm kind of wondering that if I speed up the process then it wouldn't be so hard to cope with. Thanks. You really can't ask this sort of advice on here, you need to find a really good doctor who can advise you as per your own condition. I would not take any laxatives until you have sought the correct advice, you could however take probiotics without any harm until you see your doctor.

25

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EW NEWBIE

Latest post on 29 July 2011 - 11:04

If I could maybe ask one more question. Would it be okay to take a laxative during one of these attacks? I'm kind of wondering that if I speed up the process then it wouldn't be so hard to cope with. Thanks.

25

Posts

EW NEWBIE

Latest post on 29 July 2011 - 10:58

I never considered my gallbladder being the problem but come to think of it, my Mum had her gallbladder removed I think, because of stones. I know this sounds really dramatic but when an attack comes on it's like someone has put poison in my food and I am quite ill until it leaves my system. Thank you for the advice, I think I will go back to my Dr and ask her to run some tests. <em>edited by Connect on 29/07/2011</em>

2322

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EW EXPERT

Latest post on 29 July 2011 - 10:31

If I was you connect, I would be heading to my Dr and finding out what checks/tests/scans can be done to find out what state your gallbladder is in.

25

Posts

EW NEWBIE

Latest post on 29 July 2011 - 08:24

I was just about to ask for advice on tummy issues when I saw this thread so I am really hoping someone can help. I have noticed that when I eat some types of food, within a few hours my tummy makes really loud noises and I have very similar pain to that of period pains. The pain spreads round my back and my legs feel weak and I feel run down. Sometimes this last for a few hours and I am fine but I have just noticed that if I eat pizza it's really, really bad. Does anyone know what the ingredient in a pizza that I should avoid? I have googled my symptoms and it sounds like I have either a food intolerance or IBS so wondering what on earth is in a pizza that I am reacting so badly too? I suspected yeast but I can eat bread most of the time no problem, although too much garlic bread will set me off. I get really stressed when the pain starts as I never know if it is going to be a 'okay in a few hours' or a' full-blown and off work for 3 days affair'. I manage to go to the loo as normal, maybe a little more than usual but it feels like I haven't finished. What is strange is that my symptoms usually disappear almost instantly after doing to the loo on day 3 and it's always day 3 this happens! I know I sound pathetic but I am feeling pretty miserable about this and it really is affecting my life. I have stopped going out for meals now as I am scared to eat just incase I have to leave early, which we have had to do several times recently. Also, I don't know if this is relevant but I am also plagued with thrush and have tried everything but it keeps coming back within a week of it clearing up. I also treat my husband at the same time but it doesn't make a difference. I hope someone can help. Thank you. <em>edited by Connect on 29/07/2011</em>

412

Posts

EW EXPLORER

Latest post on 29 July 2011 - 00:46

queenbee, I suggest you do the whole celiac blood profile.... because you can have a negative result in one test and positive in the others. Also, there are many cases of "false negatives" with celiac blood tests. There are many people who have had negative blood tests and also nothing showing up in the biopsy - but when they do eliminate gluten from their diet, they experience major improvements. Again, I'm not saying you are gluten intolerant or have celiac disease.... just think you should do the whole bloodwork.

Princess_I45169

1953

Posts

EW EXPERT

Latest post on 28 July 2011 - 20:27

http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html There is NO such thing in the real medical world as leaky gut syndrome. I've read that just lately too. It's yet another 'disease' invented by the medical establishment to sell more drugs. No - not invented by the medical community but by charlatans and quacks who have little medical training such as functional medicine practitioners who have little real medical background!!!!!

619

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EW GURU

Latest post on 28 July 2011 - 20:25

http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html There is NO such thing in the real medical world as leaky gut syndrome. I've read that just lately too. It's yet another 'disease' invented by the medical establishment to sell more drugs.

374

Posts

EW EXPLORER

Latest post on 28 July 2011 - 17:53

http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html There is NO such thing in the real medical world as leaky gut syndrome, you need to find a medically qualified doctor who will get to the bottom (excuse pun) of your symptoms, don't even begin to believe someone who told you or even suggested you had this. You just need to source the right sort of doctor for your conditions and get a full work up done to narrow down possible causes.

374

Posts

EW EXPLORER

Latest post on 28 July 2011 - 17:53

http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html There is NO such thing in the real medical world as leaky gut syndrome, you need to find a medically qualified doctor who will get to the bottom (excuse pun) of your symptoms, don't even begin to believe someone who told you or even suggested you had this. You just need to source the right sort of doctor for your conditions and get a full work up done to narrow down possible causes.

41

Posts

EW NEWBIE

Latest post on 28 July 2011 - 16:37

Livelytrish: I have tried to manage it with the help of gastro specialists for the last 10 years but the medicines they prescribe always seem to stop working after a certain point and foods that I could tolerate at one stage become problematic after some time. With all the tests that I have done, doctors find nothing wrong and simply say its IBS and I am stressing myself.One doctor at a hospital here also prescribed anti depressants which didnt help me at all but instead resulted in hyperprolactonima (a hormonal disorder). So i guess its an ongoing vicious cycle Terrible_twos: I did do a blood test for celiac disease - but it was just one blood test and not 5 but it came back negative. I am consulting a functional medicine practitioner and she mentioned that with all my symptoms I may have a leaky gut. I have done the blood test this morning for food intolerances and if there is a long list of food intolerances that come up compared to my last blood test 8 months ago then she will treat me for leaky gut. But first she would also need to do some more tests to see yeast, candida, parasite levels as well because I used to travel a lot earlier - India, Thailand, Kenya all countries which seem to increase chances of getting a parasite/bacterial infection which can last upto 20-30 years in the digestive tract. In the mean time I am just hanging in there hoping the holistic approach improves my condition atleast by some extent!

412

Posts

EW EXPLORER

Latest post on 28 July 2011 - 00:54

queenbee, have you been tested for celiac disease? It's one of the possible reasosns for leaky gut syndrome. I know you've been through all possible tests, but just checking.... "Just IBS" - this is something that loads of celiac disease patients have heard for years before being diagnosed. I'm not saying you have it, but no harm getting the celiac blood test (total of 5 tests) done - if you have not been tested already. I was listening to Dubai Eye couple of weeks back and there was a "functional medicine practitioner" who was talking on all things nutrition, exercise, etc. He mentioned how most of health issues can be related to your gut. So the first thing he does is check on the nutrition aspect of the patient. Of course, he isn't a doctor, but if you're looking for a more holistic approach... I don't know anyone who has been treated by him, in fact, that was the first time I heard of functional medicine. It's just that he seemed to know what he was talking about. Hope you get the right advice and diagnosis.

1340

Posts

EW OLDHAND

Latest post on 27 July 2011 - 18:42

Please don't fall for the snake oil salesmen...........and please don't assume that the conventional docs are wrong (unless they actually said it was "JUST" IBS in which case please find yourself a more sympathetic doc..) IBS can be crippling. But it is manageable, once you accept it as a long term condition, find the correct medication and diet/eating patterns.......and stop yourself from getting wound up about it. As a very wise Doctor once told me, the digestive system is the most emotionally sensitive part of the body........hunting for an illusory magic alternative cure will do nothing but lead to more stress........hence more symptoms....in any case, good luck.

41

Posts

EW NEWBIE

Latest post on 27 July 2011 - 17:54

Thanks for all the advice ladies, every little helps in this case. I'll keep you updated about my progress with the treatment after all the new tests have been done over the next 2-3 weeks. I've been suffering for so long now so really hoping that this time I am recieving the correct diagnosis. Princess -I have been to a variety of gastro specialists in Dubai and the UK and after a variety of tests including pipes, mri etc they say nothing is really wrong and its just IBS. With all the symptoms i suffer there definitely is something wrong, maybe not something the medical professional recognises. I guess only those suffering how traumatic it is and how much it affects your daily life.

671

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EW GURU

Latest post on 27 July 2011 - 17:33

*sigh* Princess I'm very glad you don't suffer from it, but I'm sure you must realize how upsetting your words are to those of us who are very much affected by it.

Sugarbeach23383

1566

Posts

EW EXPERT

Latest post on 27 July 2011 - 17:00

am i right in saying that this is not even recognised by Drs and only "alternative therapists" recognise it? Yep...but doesn't make it less real though... er.... would disagree there, if the medical profession doesn't recognise it as a medical condition, perhaps it's not quite real Yes....agree to disagree....

Princess_I45169

1953

Posts

EW EXPERT

Latest post on 27 July 2011 - 16:57

am i right in saying that this is not even recognised by Drs and only "alternative therapists" recognise it? Yep...but doesn't make it less real though... er.... would disagree there, if the medical profession doesn't recognise it as a medical condition, perhaps it's not quite real

Sugarbeach23383

1566

Posts

EW EXPERT

Latest post on 27 July 2011 - 16:54

am i right in saying that this is not even recognised by Drs and only "alternative therapists" recognise it? Yep...but doesn't make it less real though...

Princess_I45169

1953

Posts

EW EXPERT

Latest post on 27 July 2011 - 16:40

am i right in saying that this is not even recognised by Drs and only "alternative therapists" recognise it?

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