Sleep Lab for autistic Children??? or children in general? | ExpatWoman.com
 

Sleep Lab for autistic Children??? or children in general?

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EW EXPERT
Latest post on 08 February 2011 - 16:37

My neice is asking if there is anyone who knows of a sleep Lab (other than American Hosp) who also does children? It does not have to be in Dubai. Her son is autistic and not sleeping is making it worse. She is trying to find somewhere he can be tested for a sleep disorder so she can help him rest. (he is 4)

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EW EXPERT
Latest post on 12 February 2011 - 21:48
Thank you Desertrose. I appreciate you sharing your story. I have passed it along to my neice. How wonderful that your son is doing well and you are able to get more sleep lol.....
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EW OLDHAND
Latest post on 12 February 2011 - 18:34
thanks so much for the information. I find it amazing that a child who is desperate for the body to rest and rejuvinate, cannot sleep more than 3 hours. In the things I have been reading it suggests that if the child can sleep normal hours for a child 8 or more than the symptoms reduce to a manageble level? Did you find that Desertrose? How is your son functioning now? Sue, I don't know if my son not needing to sleep affected his days because I really dont have anything to compare things to. There weren't any days when he slept more than 3 - 4 hours, and quite often not all at once. However now that he is used to gettting a 'good' nights sleep thanks to melatonin its obvious that when he has a disturbed night it an affect him the next day, and that a few disturbed nights in a row can lead to him being seriously at a disadvantage when it comes to him coping with his day. Last night was one of those nights, he was up and down a lot and when I was trying to get him back to sleep I was mentally re-arranging his day just in case. I would have made sure that his day would have been one of low arousal. Stressors would have been kept to a minimum and a lot of sensory work would have been done with him. As it is tho he still wanted to go out for breakfast and to the cinema this afternoon. However since we've been home he's been bouncing away on his sensory ball so he's obviously feeling the need for calming. We're lucky that he can now suss out what it is he needs to be doing to help himself when he's feeling out of sorts, sometimes he lets us know he needs help and other times he just gets on with helping himself. Going now to therapies - different things work for different children and it really does depend on the child as does a 'lets try one thing at a time approach' or a 'lets try lots of things at the same time and see if it helps'. At different times we've adopted different approaches. There really is no rule of thumb. Your nephew is 4 and I think I would be looking to him having a full sensory profile done, access to PECS or the likes, visual prompts and timetabling/scheduling, and a good routine. The wee boy is probably very confused by the world and one way of helping him cope with his day is to make sure he knows what the next half hour or so will involve. A big white board with whats going to happen, accompanied by pictures of what is going to happen can work wonders when it comes to reducing stress in our children. This is one of the reason why children can sit and watch the same video etc over and over again - they need the familiarity and the security of the sameness. It can also be why some of the children will only eat the same food over and over again and why something cooked even 10 seconds longer than usual can cause great upset to the child. It can terrify the wits out of them. One thing tho - if a child spends a lot of time watching videos etc he won't be burning energy and might not be getting tired enough in the day to need a good sleep at night. I would be looking to make sure the wee boy was getting lots of physical activety - but you would need to make sure its of the right kind because if he has sensory issues the wrong activety can make things worse. If for eg we put my son on a treadmill it would drive him potty, however excercising on a rowing machine does only good things for him. We've done the Listening Programme and we think its helped, its not something you just do once tho and you really do need the child to co-operate with you as it involves 20 mins or so of listening to modified classical music (or nature music) through headphones. In answer to how my sons doing - fantastically well. He's severly autistic, lives at the very severe end of the spectrum and he'll always require round the clock care. it doesn stop him tho from living a very happy and productive life, all things considered :) You come across as a lovely lovely lady, every family who has an child on the spectrum should have an aunty like you in their life. I hope some of this has helped you :) I'm inclined to rabbit on a bit when it comes to our children. :D
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EW EXPERT
Latest post on 12 February 2011 - 08:36
thanks designbabe :)
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EW NEWBIE
Latest post on 11 February 2011 - 23:24
http://www.ageofautism.com/2010/03/aoa-contest-cutting-edge-therapies-for-autism-by-ken-siri-and-tony-lyons.html 36. Melatonin Therapy for Sleep Disorders by Dr. James Jan 221 This book might help- I've identified the number from all the therapies and they have doctors name and research fully references http://www.amazon.com/Cutting-Edge-Therapies-Autism-2010-2011-Siri/dp/1616080256/ref=sr_1_1?ie=UTF8&s=books&qid=1268052859&sr=1-1 the link on amazon
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EW EXPERT
Latest post on 11 February 2011 - 21:31
I am very sorry to hear nothing has worked for your son Fionam :(. I would think it is all subjective and dependent on the child and where he is on the spectrum? I wonder if different therapies work for some and not for others? your child is severely autistic, that must be very hard on you :( ,,I cannot imagine what your life is like. I dont think my nephew is severley autistic but again, I don't know where he is...he does not speak unless he feels like using the words and is facinated by videos, which help to calm I think. The trouble sleeping is the big thing I think as my Neice is finding when he can sleep, he is much better a coping, so, hopefully there is a therapy out there, somewhere for him :)...... I did look at the Listening Programme tattybogle. It is very intriguing AND sounds like it might also help with Alzheimer patients in the beginning? I have more to read on it as my mother had alzheimers so I am finding this work very interesting. Not only for my husbands nephew but for myself :) Just in case. <em>edited by SueB on 11/02/2011</em>
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EW NEWBIE
Latest post on 09 February 2011 - 22:03
Might be worth exploring The Listening programme . Google advanced brain technologies in US or www.learning-solutions .co.uk in UK
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EW EXPERT
Latest post on 09 February 2011 - 12:30
has anyone taken their child to the Sleep Lab at the American Hospital???
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EW NEWBIE
Latest post on 09 February 2011 - 11:57
There has also been links with kids who have been diagnosed with ADHD and ADD have been able to come off ritalin once they've started getting a better nights sleep using Melatonin. Melatonin might be something to consider once they've been to a sleep clinic etc
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EW NEWBIE
Latest post on 09 February 2011 - 11:50
You can get a special blue bulb from the Organic Cafe which is supposed to help with melatonin and aid sleep. Might be worth a try.
2262
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EW EXPERT
Latest post on 09 February 2011 - 10:58
thanks so much for the information. I find it amazing that a child who is desperate for the body to rest and rejuvinate, cannot sleep more than 3 hours. In the things I have been reading it suggests that if the child can sleep normal hours for a child 8 or more than the symptoms reduce to a manageble level? Did you find that Desertrose? How is your son functioning now?
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EW NEWBIE
Latest post on 09 February 2011 - 08:23
You may like to look at this also. http://www.threewells.nl/index.en.php/Autism
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EW NEWBIE
Latest post on 09 February 2011 - 08:09
I know Dr Parvis at Synergy Medical Centre (04 3485452) specialises in autistic children and works together with a Dr in Holland ( Rob Nijssen) who also has an autistic son. You could google him. Dr Parvis sells a blue lamp bulb that helps in sleep.
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EW NEWBIE
Latest post on 09 February 2011 - 06:47
Pretty sure the Neuro Spinal Hospital on Beach Road has one. Went to visit a little boy there over summer.
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EW OLDHAND
Latest post on 09 February 2011 - 03:39
Sue, this is the only place I know of. I cant give you any information regarding the effectiveness of what goes on there as I don't know anyone who's used the services of the clinic - everyone I knew would have been too tired to make the journey to the clinic. :) A bit of a sick joke I know but sometimes you just have to laugh ;) http://www.sleepscotland.org/about.php I dont know what else to suggest. Getting our son to need more than 3 hours a night for the first 15 years of his life was never something we were able to manage, we weren't alone in that as parents as a visit to any autism forum will highlight. Autism and the lack of need to sleep - 20 years into my darling boys life and I'm still none the wiser as to the whys of it all. Its as big a mystery to me now as it always was. However my boy does now sleep but only because we give him melatonin. I do know that nowadays parents can take a bio-medical approach to it, and I would imagine if there are sensory issues going on then perhaps weighted blankets might help with things, as would a light box. Apart from that though I really am stumped, its an area where I dont have anything to suggest because I know for sure our son only needed his 3 hours a night. It was/is the way he's made. edited by DesertRose1958 on 09/02/2011 <em>edited by DesertRose1958 on 09/02/2011</em>
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EW EXPERT
Latest post on 08 February 2011 - 21:46
106 view of this subject. There must be some people who can at least give me a direction on where to look. It does not have to be in Dubai, anywhere in the world will work for my nephew :)
2262
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EW EXPERT
Latest post on 08 February 2011 - 20:46
thanks Mrs L ;)...I understand there is a very large community here in Dubai so there must be someone with the info my neice needs :)..thanks for asking your friend ;)
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EW EXPLORER
Latest post on 08 February 2011 - 20:10
Sue , I know a couple of people I can ask, who may know - I probably won't have an answer tonight however. Cheers mrs L
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EW EXPERT
Latest post on 08 February 2011 - 20:03
bump
 
 

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