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ewmoda

Living with an Autoimmune disorder?

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8

Posts

EW NEWBIE

Latest post on 30 July 2013 - 07:59

Hi Ladies. I am with Dr. Humeira Badsha who is wonderful. The way I understand it from her is that medications such as methotrexate have been proven to prevent joint damage. However, she says that diet and exercise such as yoga definitely have a role to play. She recently suggested I read a book called "Clean" which outlines a detox program which can help with autoimmune disorders. I have not read it but she says the basis of the diet is eliminating gluten, dairy, and add blended or juiced veggies. Please let me know when there is a meeting of the group

25

Posts

EW NEWBIE

Latest post on 29 July 2013 - 08:28

Hi Ladies I have RA and have posted on here several times. We have a small group who email each other and get together to share info. I have improved out of sight since changing the way I eat and I feel well again after many, many years of going undiagnosed. The Doctors I saw (there were many!!) all told me that my symptoms were menopause related and to get a grip of myself "take these anti-depressants" and lose some weight. Well no matter what I did to try and lose weight, I continued to put weight on...all 25kgs of it. I was finally diagnosed with RA early 2012, since then I have been reading/researching and have spent the past 18 months on my own food elimination programme as I'm convinced (and proof) that what we eat has a big impact on RA and other autoimmune diseases. I finally feel well again, have also lost 12kg along the way without one bit of effort at all. My flares appear to be food/allergy and infection related - these things were creating so much inflammation in my body and of course inflammation equals fluid retention...my arms were HUGE and I just couldn't work out why...I just felt so unwell and no one was listening. For example if I eat parmesan or blue cheese for example I will go into a cruel flare in a short period of time. If I have the smallest infection, it will make me unwell and create nasty pain and stiffness. I have only put all this RA puzzle together in the last 18. I chose not to take Methotrexate. I am now doing extremely well and hope others will at least try what I did...takes time but well worth it.

Mothership75835

1

Posts

EW NEWBIE

Latest post on 29 July 2013 - 05:47

My first post as we move to dubai next week. I have severe RA and two little kiddos. The stress of the move from California to Dubai certainly doesn't help the flair ups.....but gluten free and juicing certainly help me. Would love to join a group once we arrive. Looks like our house is in jerrumiah island (sure I spelled that wrong) and kids will be attending kindergarten and 2nd grade at ASD.

651

Posts

EW GURU

Latest post on 29 July 2013 - 00:46

Has the group taken off? I'm about to start Methotrexate next week. My joints are riddled with inflammation and I've just had enough!!! Right hand is the worst at the moment, and I'm hating the fact that I can't pick up my kids sometimes. I've just had Cortisone injections today, last time was in 2009. But I've had flare ups on and off since then, but I've always been able to manage them somehow. RA is not something new to me, been with me since the age of 13. I'm with Dr Bhavna Khan, who is fantastic! After my consult today, and the extent of my inflammation, I thought Methotrexate was my only option...but now it seems others have kept it under control with alternative methods?! Why is the methotrexate so bad for you then? X

319

Posts

EW EXPLORER

Latest post on 03 February 2013 - 11:39

I have RA and would very much like to meet up with others. Can you please post some more details on here. Thanis

76

Posts

EW NEWBIE

Latest post on 03 February 2013 - 11:08

Hi there I have RA and have started a small and personal support network for anyone suffering from Rheumatoid Arthritis/auto immune disorders who would like to try and manage things more naturally with diet/lifestyle etc. We catch up for regular coffee mornings to talk and educate one another in a relaxed and informal setting which allows us to share information on reducing pain levels and even medication. It's all about supporting and educating ourselves for a healthier and less painful life with RA. Let me know if you're interested. Hi OzDubaiin, I have 2 AI conditions and would love to join your group. Could you let me know some details please. Many thanks

dogcatcher44047

461

Posts

EW EXPLORER

Latest post on 20 January 2013 - 18:38

I was diagnosed with Lupus over ten years ago. Symptoms were like arthritis with severe joint pain and very fatigued. After a few years on meds they seemed to stop working so I worked hard at changing my eating. Nothing processed, no mushrooms...figure out what your triggers are. Recently due to stress my body thought shingles would be really fun to have. I have to control the stress which controls the lupus and shingles. My daughter was diagnosed with juvenile arthritis at 11 and she also had shingles the same year. Her triggers as a teen are stress and poor diet. The aches we get are with severe changes in weather.

45

Posts

EW NEWBIE

Latest post on 20 January 2013 - 16:40

Hi all, I also have an auto immune disease, thankfully mine is only mild though (too mild to treat, not bad enough to do anything about :-(). I can't remember the name of this but it makes me extremely tired and lethargic, it also effects my memory. As I said though all the doctors have agreed that it's not bad enough so I basically have to live with it. Jo

1

Posts

EW NEWBIE

Latest post on 20 January 2013 - 14:53

I have a friend who was recently diagnosed with Lupus, Arthritis and fybromyagia. Can someone pls let me know of a support group she can join so she can get some emotional support? I am very concerned about her and she dosnt know anyone in Dubai with similar conditions and dosnt even have a good doctor whom she can trust. Please advise. Thank you.

25

Posts

EW NEWBIE

Latest post on 05 November 2012 - 22:47

Hi there I have RA and have started a small and personal support network for anyone suffering from Rheumatoid Arthritis/auto immune disorders who would like to try and manage things more naturally with diet/lifestyle etc. We catch up for regular coffee mornings to talk and educate one another in a relaxed and informal setting which allows us to share information on reducing pain levels and even medication. It's all about supporting and educating ourselves for a healthier and less painful life with RA. Let me know if you're interested.

Marthabelle60769

28

Posts

EW NEWBIE

Latest post on 03 July 2012 - 09:00

Hi All, I am new to Dubai and finally signed up to the forum! Just thought I would say that I'd be really keen for a auto immune group of some nature - Rheumatoid Arthritis. Please do say when you are up and running! M

1

Posts

EW NEWBIE

Latest post on 17 June 2012 - 08:27

dear all, i am desperately looking for information and support on Lupus/MCTD. My 16 year old has been diagnosed with it. Have no idea what to expect and how to deal with it. Is there any other mothers out there? Any advice is helpful. Thankyou so much. AJ

412

Posts

EW EXPLORER

Latest post on 22 April 2012 - 23:47

I have two and would be happy to help.

704

Posts

EW GURU

Latest post on 22 April 2012 - 21:45

I have two and would be happy to join in.

94

Posts

EW NEWBIE

Latest post on 22 April 2012 - 21:19

I have two autoimmune disorders and would surely help out if I there was anything I could do...

dogcatcher44047

461

Posts

EW EXPLORER

Latest post on 22 April 2012 - 17:25

I have Lupus as well. Found out almost ten years ago. My symptoms are more arthritic and fatigue during a flare up. Have mostly had this under control on my own as most mess work for a bit then stop. My newest illness is shingles. The moment I get stressy I feel sharp pains in my shoulders and hair line, chicken pox like spots appear on my neck. We manage though!

16

Posts

EW NEWBIE

Latest post on 22 April 2012 - 14:55

I also suffer from auto immune illnesses ,interstitial lung disease & a bone marrow disorder. Both quite rare & have yet to meet someone with similar illness in Dubai. Finding expertise in UAE difficult but I am fortunate in finding Consultants who are sympathetic,caring & are prepared to research my condition for appropriate treatment.

55

Posts

EW NEWBIE

Latest post on 22 April 2012 - 11:31

Thank you Purple, I will get myself sorted and I will be in touch:-) I actually have 3 AI's myself.. with 2 lurking (borderline) so I have done a LOT of research and have gone into specialist area's about it within my job. So I am all about the reaching out right now :-) Thanks again!

1247

Posts

EW OLDHAND

Latest post on 22 April 2012 - 08:45

the glutenfree uae group also has a ton of people with autoimmune disorders, Celiac / Coeliac as well as many secondary autoimmune disorders. Some people even have 3! If you start something up please do let me know, I will be happy to support it. (you can contact me via the glutenfree uae facebook or website)

MorningCat21691

149

Posts

EW NEWBIE

Latest post on 22 April 2012 - 08:40

I have 2 autoiummune diseases. I would be happy to share my experience/ give support.

67

Posts

EW NEWBIE

Latest post on 22 April 2012 - 08:27

I have 2 autoimmune disorders. Would love to join a support group :-)

317

Posts

EW EXPLORER

Latest post on 22 April 2012 - 08:01

If it helps, I think someone posted a while ago about an MS support group in Dubai, you could try doing a search to find it.

55

Posts

EW NEWBIE

Latest post on 22 April 2012 - 07:46

Thank you ladies. I think I will go ahead with my idea to start something up. It seems there are quite a few of us with different AI's going through similar things and also the same disorders with very different symptoms! Good luck to all of you, stay healthy and watch this space!!

1236

Posts

EW OLDHAND

Latest post on 21 April 2012 - 12:56

I too have lupus which gives me joint pain. None of the medication available agrees with me so I don't bother. I am still able to do my part time nursing job with little problem. I also have vitiligo (patchy skin) so can't sit in the sun (just as well as I don't like sitting in the sun LOL!) Have had problems with my joints for many years and just thought that it was because of my almost 40 years of nursing but I had my blood tested about 5 years ago which gave me the diagnosis of lupus. It really doesn't impact on my life although I have to wear supportive shoes and am very stiff first thing in the morning. Everyone is different though. I actually felt worse while I was in Doha which was strange as I assumed that the heat would help but in fact had the opposite effect and I have less pain in the cooler UK climate.

112

Posts

EW NEWBIE

Latest post on 21 April 2012 - 12:54

I also have Lupus (SLE) mine is totally under control at the moment, but happy to help in anyway. ACB XX

94

Posts

EW NEWBIE

Latest post on 21 April 2012 - 10:31

I have lupus and have not found anyone else here with it. It is early days, but I do wonder how I will get on if it escalates, which it will, I assume. I think that there are few different types of lupus - my mum just gets it in her hands and shoulder but then a family friend has it and it takes her out of action for months at at time.

102

Posts

EW NEWBIE

Latest post on 21 April 2012 - 09:48

I have lupus and have not found anyone else here with it. It is early days, but I do wonder how I will get on if it escalates, which it will, I assume. I've got lupus. Diagnosed five years ago and I have it totally under control and in remission Happy to help if you need any info!

fairycakeyumm21878

2239

Posts

EW EXPERT

Latest post on 21 April 2012 - 09:25

I have a Rheumatoid arthritis,there are support groups out there in Dubai. Also lots of support on Facebook pages on twitter. There is also exercise groups for us as well here.

CAPTAIN AMERICA...

1260

Posts

EW OLDHAND

Latest post on 21 April 2012 - 09:16

I have lupus and have not found anyone else here with it. It is early days, but I do wonder how I will get on if it escalates, which it will, I assume.

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